- Supporting Stewardship: Funding, Utilization, and Sustainability as Ethical Concerns in Networked Biobanking
- Talking About Suffering in the Intensive Care Unit
- Deep Brain Stimulation for Childhood Treatment-Resistant Obsessive-Compulsive Disorder: Mental Health Clinician Views on Candidacy Factors
- Clinical Ethics Fellowship Programs in the United States and Canada: Program Directors’ Opinions About Accreditation and Funding
- Pediatric Assent in Clinical Practice: A Critical Scoping Review
- Ethical Issues in Implementation Science: A Qualitative Interview Study of Participating Clinicians
- “Down Syndrome is Not a Curse”: parent Perspectives on the Medicalization of Down Syndrome
- To Counsel or Not to Counsel: Physician Attitudes and Experiences with Do-It-Yourself (DIY) Fecal Microbiota Transplant (FMT)
- “Ethical Responsibility Very Often Gets Drowned Out”: A Qualitative Interview Study of Genome Scientists’ and ELSI Scholars’ Perspectives on the Role and Relevance of ELSI Expertise
- Understanding the Gap: A Cross-Sectional Survey of ELSI Scholars’ Dissemination Practices and Translation Goals
- Spotlighting Structural Constraints on Decisions About Participation in Genomic and Precision Medicine
- Advance Medical Decision-Making Differs Across First- and Third-Person Perspectives
- Procedural Dimensions of Religious Exemptions to Covid-19 Vaccine Mandates: Promoting Clarity, Fairness, and Transparency in Applications
- Views of Genetic Testing for Autism Among Autism Self-Advocates: A Qualitative Study
- The Gap in Attitudes Toward Withholding and Withdrawing Life-Sustaining Treatment Between Japanese Physicians and Citizens
- Moral Engagement and Disengagement in Health Care AI Development
- Public Perspectives on Investigative Genetic Genealogy: Findings from a National Focus Group Study
- Patient Perceptions on the Advancement of Noninvasive Prenatal Testing for Sickle Cell Disease among Black Women in the United States
- Parents and Provider Perspectives on the Return of Genomic Findings for Cleft Families in Africa
- A Vision for Empirical ELSI along the R&D Pipeline
- How Do Molecular Systems Engineering Scientists Frame the Ethics of Their Research?
- The Need to Consider Context: A Systematic Review of Factors Involved in the Consent Process for Genetic Tests from the Perspective of Patients
- Structural Equation Modeling Analysis on Associations of Moral Distress and Dimensions of Organizational Culture in Healthcare: A Cross-Sectional Study of Healthcare Professionals
- Morally Problematic Situations Encountered by Adults Living With Rare Diseases
- Interrogating the Value of Return of Results for Diverse Populations: Perspectives from Precision Medicine Researchers
- Clinician Perspectives on Opioid Treatment Agreements: A Qualitative Analysis of Focus Groups
- Informed Consent among Clinical Trial Participants with Different Cancer Diagnoses
- Should HIV Vaccines Be Made Available at No or Subsidized Cost? A Qualitative Inquiry of HIV Vaccine Trial Stakeholders in Tanzania
- Multi-Level Ethical Considerations of Artificial Intelligence Health Monitoring for People Living with Parkinson’s Disease
- Toward Consent in Molecular HIV Surveillance?: Perspectives of Critical Stakeholders
- Frequency of Perceived Conflict between Families and Clinicians at Time of Clinical Ethics Consultation in Hospitalized Children
- Expert Views on Medical Involvement in the Swiss Assisted Dying Practice: “We Want to Have Our Cake and Eat It Too”?
- Comparing Attitudes About Genomic Privacy and Data Sharing in Adolescents and Parents of Children Enrolled in a Genomic Research Repository
- Ethical Concerns of Patients and Family Members Arising During Illness or Medical Care
- Perceptions of Psychosocial and Ethical Issues and the Psychological Characteristics of Donors in the Clinical Setting of Living Kidney Donors: A Qualitative Study
- Stakeholders’ Ethical Concerns Regarding Psychiatric Electroceutical Interventions: Results from a US Nationwide Survey
- Investigating Medical Students’ Navigation of Ethical Dilemmas: Understanding the Breakdown and How to Solve It
- Ethical Issues in Donation following Circulatory Death: A Scoping Review Examining Changes over Time from 1993 to 2022
- A Focus Group Study of the Views of Persons with a History of Psychiatric Illness about Psychiatric Medical Aid in Dying
- “I Have Fought for so Many Things”: Disadvantaged families’ Efforts to Obtain Community-Based Services for Their Child after Genomic Sequencing
- Community Engagement in Precision Medicine Research: Organizational Practices and Their Impacts for Equity
- How Interactive Visualizations Compare to Ethical Frameworks as Stand-Alone Ethics Learning Tools for Health Researchers and Professionals
- Coding the Dead: Cardiopulmonary Resuscitation for Organ Preservation
- A Cross Sectional Survey of Recruitment Practices, Supports, and Perceived Roles for Unaffiliated and Non-scientist Members of IRBs
- “It was like you were being literally punished for getting sick”: formerly incarcerated people’s perspectives on liberty restrictions during COVID-19
- Ensuring the Scientific Value and Feasibility of Clinical Trials: A Qualitative Interview Study
- Offering and Returning Secondary Findings in the Context of Exome Sequencing for Hearing Loss: Clinicians’ Views and Experiences
- A Critical Analysis of White Racial Framing and Comfort with Medical Research
- Triage Policies at U.S. Hospitals with Pediatric Intensive Care Units
- A Content Analysis of Self-Reported Financial Relationships in Biomedical Research
- Ethical Healthcare Attitudes of Japanese Citizens and Physicians: Patient-Centered or Family-Centered?
- Exploring the Ethical Considerations of Direct Contact in Pediatric Organ Transplantation: A Qualitative Study
- Demand and Supply: Association between Pediatric Ethics Consultation Volume and Protected Time for Ethics Work
- A Mixed Methods Analysis of Requests for Religious Exemptions to a COVID-19 Vaccine Requirement
- “They were already inside my head to begin with”: Trust, Translational Misconception, and Intraoperative Brain Research
- Mission Creep or Mission Lapse? Scientific Review in Research Oversight
- Physicians’ Perspectives on Ethical Issues Regarding Expensive Anti-Cancer Treatments: A Qualitative Study
- Ethical Challenges Experienced by Clinical Ethicists during COVID-19
- Testing Design Bioethics Methods: Comparing a Digital Game with a Vignette Survey for Neuroethics Research with Young People
- Diversity in IRB Membership: Views of IRB Chairpersons at U.S. Universities and Academic Medical Centers
- Perceived Benefits of Ethics Consultation Differ by Profession: A Qualitative Survey Study
- Addressing Moral Distress: lessons Learnt from a Non-Interventional Longitudinal Study on Moral Distress
- Patient Perspectives on the Use of Frailty, Cognitive Function, and Age in Kidney Transplant Evaluation
- Institutional Review Board Use of Outside Experts: A National Survey
- How Do Accredited Organizations Evaluate the Quality and Effectiveness of Their Human Research Protection Programs?
- Navigating Pandemic Moral Distress at Home and at Work: Frontline Workers’ Experiences
- Managing Pandora’s Box: Familial Expectations around the Return of (Future) Germline Results
- Ethical Challenges Experienced by Healthcare Workers Delivering Clinical Care during Health Emergencies and Disasters: A Rapid Review of Qualitative Studies and Thematic Synthesis
- Advancing a Data Justice Framework for Public Health Surveillance
- Quantifying Utilitarian Outcomes to Inform Triage Ethics: Simulated Performance of a Ventilator Triage Protocol under Sars-CoV-2 Pandemic Surge Conditions
- Diversity, Profit, Control: An Empirical Study of Industry Employees’ Views on Ethics in Private Sector Genomics
- Mining the Data: Exploring Rural Patients’ Attitudes about the Use of Their Personal Information in Research
- Ethical Reasoning During a Pandemic: Results of a Five Country European Study
- Surrogate Perspectives on Patient Preference Predictors: Good Idea, but I Should Decide How They Are Used
- Ethics Consultation in U.S. Hospitals: Adherence to National Practice Standards
- Ethics Consultation in U.S. Hospitals: New Findings about Consultation Practices
- Nature vs. Nurture in Precision Education: Insights of Parents and the Public
- Variation in COVID-19 Resource Allocation Protocols and Potential Implementation in the Chicago Metropolitan Area
- Patients’ Priorities for Surrogate Decision-Making: Possible Influence of Misinformed Beliefs
- Deliberation on Childhood Vaccination in Canada: Public Input on Ethical Trade-Offs in Vaccination Policy
- Quality Characteristics for Clinical Ethics Support in the Netherlands
- Ethical Issues in Intraoperative Neuroscience Research: Assessing Subjects’ Recall of Informed Consent and Motivations for Participation
- Employer-Sponsored Egg Freezing: Carrot or Stick?
- Governing Gene Drive Technologies: A Qualitative Interview Study
- Should Feedback of Individual Results be Integrated into the Consent Process in African Genomics? Participants’ Views from an HIV-TB Genomics Research Project in Botswana
- Deliberations with American Indian and Alaska Native People about the Ethics of Genomics: An Adapted Model of Deliberation Used with Three Tribal Communities in the United States
- Absolutely Right and Relatively Good: Consequentialists See Bioethical Disagreement in a Relativist Light
- Priority Setting of Ventilators in the COVID-19 Pandemic from the Public’s Perspective
- Nurses Participation in Limited Resuscitation: Gray Areas in End of Life Decision-Making
- Nurses’ Participation in Limited Resuscitation: Gray Areas in End of Life Decision-Making
- The Therapeutic Odyssey: Positioning Genomic Sequencing in the Search for a Child’s Best Possible Life
- Reframing Recruitment: Evaluating Framing in Authorization for Research Contact Programs
- Perceptions of Medical Providers on Morality and Decision-Making Capacity in Withholding and Withdrawing Life-Sustaining Treatment and Suicide
- Key Physician Behaviors that Predict Prudent, Preference Concordant Decisions at the End of Life
- The Good and Evil of Health Policy: Medicaid Expansion, Republican Governors, and Moral Intuitions
- Understanding the Perspectives of Seniors on Dementia and Decision-Making
- Assessment of the All of Us research program’s informed consent process
- Incorporating Biobank Consent into a Healthcare Setting: Challenges for Patient Understanding
- Comparison Is Not a Zero-Sum Game: Exploring Advanced Measures of Healthcare Ethics Consultation
- How Anesthesiologists Experience and Negotiate Ethical Challenges from Drug Shortages
- Caregiver Perspectives on Informed Consent for a Pediatric Learning Healthcare System Model of Care
- Noninvasive Prenatal Testing: Views of Canadian Pregnant Women and Their Partners Regarding Pressure and Societal Concerns
- Bioethics as Object of Study: Dilemmas of Immanence in Research Ethics Review
- The Meaning of Informed Consent: Genome Editing Clinical Trials for Sickle Cell Disease
- Old Challenges or New Issues? Genetic Health Professionals’ Experiences Obtaining Informed Consent in Diagnostic Genomic Sequencing
- Exception From Informed Consent: How IRB Reviewers Assess Community Consultation and Public Disclosure
- How Biomedical Citizen Scientists Define What They Do: It’s All in the Name
- “It’s Just Another Added Benefit”: Women’s Experiences with Employment-Based Egg Freezing Programs
- Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study
- Ethical, Legal, and Social Issues (ELSI) of Responsible Data Sharing Involving Children in Genomics: A Systematic Literature Review of Reasons
- Reducing the Single IRB Burden: Streamlining Electronic IRB Systems
- Unplanned Cesarean Birth: Can the Quality of Consent Affect Birth Experiences?
- Restrictions on Reproductive Care at Catholic Hospitals: A Qualitative Study of Patient Experiences and Perspectives
- Ethics Consultations at a Major Academic Medical Center: A Retrospective, Longitudinal Analysis
- Perspectives on Precision Medicine in a Tribally Managed Primary Care Setting
- Evaluating the Quality of Research Ethics Review and Oversight: A Systematic Analysis of Quality Assessment Instruments
- Managing Conflicts and Maximizing Transparency in Industry-Funded Research
- COVID-19: Advancing Empirical Bioethics Research
- Differences in Conceptual Understanding of the “Actionability” of Incidental Findings and the Resultant Difference in Ethical Responsibility: An Empirical Study in Japan
- “I Want to Do It, But I Want to Make Sure That I Do It Right.” Views of Patients with Parkinson’s Disease Regarding Early Stem Cell Clinical Trial Participation
- “We’re Not Ready, But I Don’t Think You’re Ever Ready.” Clinician Perspectives on Implementation of Crisis Standards of Care
- Research Use of Electronic Health Records: Patients’ Views on Alternative Approaches to Permission
- When Do Pediatricians Call the Ethics Consultation Service? Impact of Clinical Experience and Formal Ethics Training
- Informed Consent in Two Alzheimer’s Disease Research Centers: Insights From Research Coordinators
- First Do No Harm: Ethical Concerns of Health Researchers That Discourage the Sharing of Results With Research Participants
- Incorporating Ethically Relevant Empirical Data From Systematic Review of Reasons: A Case Study of Sudden Unexpected Death in Epilepsy
- Interdisciplinary Collaborative Auditing as a Method to Facilitate Teamwork/Teams in Empirical Ethics Projects
- From x-phi to bioxphi: Lessons in Conceptual Analysis 2.0
- The Ought and is of Conscience: The Value of Empirical Bioethics for Reframing Normative Analysis
- Overcoming Biases Together: Normative Stakes of Interdisciplinarity in Bioethics
- Keeping Bioethics Concrete: How Social Scientific Research Generates Values
- AI Methods in Bioethics
- The False Dichotomy Between Empirical and Normative Bioethics
- Beyond Binaries: Dissolving the Empirical/Normative Divide
- The Empirical and the Philosophical in Empirical Bioethics: Time for a Conceptual Turn
- Experimental Philosophical Bioethics
- When Moral Intuitions and Empirical Findings Collide: A Case for Revisiting Protectionist Tendencies in Bioethics
- Incommensurable Processes of Reasoning and Implications for Empirical and Normative Bioethics
- Ethics Review in Anti-Doping Research: Experiences of Stakeholders
- Is Real-Time ELSI Realistic?
- From Expectations to Experiences: Consumer Autonomy and Choice in Personal Genomic Testing
- Clinicians’ Perspectives on the Duty to Inform Patients About Medical Aid-in-Dying
- The Impact of Physician Social Media Behavior on Patient Trust
- Breaking a Vital Trust: Posting Photos of Patients on Facebook Among a Sample of Peruvian Medical Students
- Patient’s Perspectives of Experimental HCV-Positive to HCV-Negative Renal Transplantation: Report from a Single Site
- Operational Characteristics of Institutional Review Boards (IRBs) in the United States
- Media Coverage of Ethical Issues in Predictive Genetic Testing: A Qualitative Analysis
- A Content Analysis of Patient Advocacy Organization Policies Addressing Institutional Conflicts of Interest
- Ethical Awareness Scale: Replication Testing, Invariance Analysis, and Implications
- Return of Value in the New Era of Biomedical Research—One Size Will Not Fit All
- Examining Physician Interactions with Disease Advocacy Organizations
- Exploring the Role of Shared Decision Making in the Consent Process for Pediatric Genomics Research in Cameroon, Tanzania, and Ghana
- Ethical Leadership and Employees’ Perceptions About Raising Ethical Concerns to Managers in the Veterans Health Administration
- What Is the Minimal Competency for a Clinical Ethics Consult Simulation? Setting a Standard for Use of the Assessing Clinical Ethics Skills (ACES) Tool
- Cancer Clinical Trial Patient-Participants’ Perceptions about Provider Communication and Dropout Intentions
- Trust and Expectations of Researchers and Public Health Departments for the Use of HIV Molecular Epidemiology
- Addiction, Identity, Morality
- Preventive Misconception and Risk Behaviors in a Multinational HIV Prevention Trial
- Enhancing Understanding of Moral Distress: The Measure of Moral Distress for Health Care Professionals
- Bedside Rationing Under Resource Constraints—A National Survey of Ethiopian Physicians’ Use of Criteria for Priority Setting
- Older Teens’ Understanding and Perceptions of Risks in Studies With Genetic Testing: A Pilot Study
- Broadening the Debate About Post-trial Access to Medical Interventions: A Qualitative Study of Participant Experiences at the End of a Trial Investigating a Medical Device to Support Type 1 Diabetes Self-Management
- Single-Patient Expanded Access Requests: IRB Professionals’ Experiences and Perspectives
- Developing clinical ethics support for an Australian Health Service: A survey of clinician’s experiences and views
- Impartiality and infectious disease: Prioritizing individuals versus the collective in antibiotic prescription
- Framing the diagnosis and treatment of absolute uterine factor infertility: Insights from in-depth interviews with uterus transplant trial participants
- Moral distress in medical student reflective writing
- Cameras on beds: The ethics of surveillance in nursing home rooms
- A content analysis of the views of genetics professionals on race, ancestry, and genetics
- Genes wide open: Data sharing and the social gradient of genomic privacy
- Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences
- Assessing Patient Perspectives on Receiving Bad News: A Survey of 1337 Patients With Life-Changing Diagnoses
- Data and tissue research without patient consent: A qualitative study of the views of research ethics committees in New Zealand
- “I want us to be a normal family”: Toward an understanding of the functions of anonymity among U.S. oocyte donors and recipients
- Comparison of philosophical concerns between professionals and the public regarding two psychiatric treatments
- Ethical understandings of proxy decision making for research involving adults lacking capacity: A systematic review (framework synthesis) of empirical research
- Reliance agreements and single IRB review of multisite research: Concerns of IRB members and staff
- Conflicts of interest policies for authors, peer reviewers, and editors of bioethics journals
- Parents’ attitudes toward consent and data sharing in biobanks: A multisite experimental survey
- Freezing fertility or freezing false hope? A content analysis of social egg freezing in U.S. print media
- Taking societal cost into clinical consideration: U.S. physicians’ views
- Cross-cultural perspectives on decision making regarding noninvasive prenatal testing: A comparative study of Lebanon and Quebec
- Moving beyond the theoretical: Medical students’ desire for practical, role-specific ethics training
- “I didn’t have anything to decide, I wanted to help my kids”—An interview-based study of consent procedures for sampling human biological material for genetic research in rural Pakistan
- To report or not to report: Exploring healthy volunteers’ rationales for disclosing adverse events in Phase I drug trials
- How acceptable is paternalism? A survey-based study of clinician and nonclinician opinions on paternalistic decision making
- Patient perspectives on compensation for biospecimen donation
- An empirical assessment of the short-term impacts of a reading of Deborah Zoe Laufer’s drama Informed Consent on attitudes and intentions to participate in genetic research
- Undisclosed conflicts of interest among biomedical textbook authors
- Understanding variations in secondary findings reporting practices across U.S. genome sequencing laboratories
- Ethical and regulatory challenges of research using pervasive sensing and other emerging technologies: IRB perspectives
- Epistemic injustice in dementia and autism patient organizations: An empirical analysis
- Views of clinical trial participants on the readability and their understanding of informed consent documents
- “Will they be good enough parents?”: Ethical dilemmas, views, and decisions among assisted reproductive technology (ART) providers
- Counseling parents at risk of delivery of an extremely premature infant: Differing strategies
- How should we deal with misattributed paternity? A survey of lay public attitudes
- Same behavior, different provider: American medical students’ attitudes toward reporting risky behaviors committed by doctors, nurses, and classmates
- Main outcomes of an RCT to pilot test reporting and feedback to foster research integrity climates in the VA
- Consent for organ donation after circulatory death at U.S. transplant centers
- Improving informed consent: Stakeholder views
- Membership recruitment and training in health care ethics committees: Results from a national pilot survey
- The use of an online comment system in clinical ethics consultation
- Is it important to disclose how treatments are selected in clinical research and clinical care?
- Qualitative study of participants’ perceptions and preferences regarding research dissemination
- Does experience matter? Implications for community consultation for research in emergency settings
- Primary care physicians’ views about gatekeeping in clinical research recruitment: A qualitative study
- Adolescent oncofertility discussions: Recommendations from a systematic literature review
- Growing an ethics consultation service: A longitudinal study examining two decades of practice
- When bins blur: Patient perspectives on categories of results from clinical whole genome sequencing
- Healthy individuals’ perspectives on clinical research protocols and influences on enrollment decisions
- The interactions of Canadian ethics consultants with health care managers and governing boards during times of crisis
- Perspectives of IRB chairs on the informed consent process
- A randomized study of a method for optimizing adolescent assent to biomedical research
- Moral conflict and competing duties in the initiation of a biomedical HIV prevention trial with minor adolescents
- Physician understanding and application of surrogate decision-making laws in clinical practice