- The Meaning of Care and Ethics to Mitigate the Harshness of Triage in Second-Wave Scenario Planning During the COVID-19 Pandemic
- Ethics Lessons From Seattle’s Early Experience With COVID-19
- Ethical Challenges Arising in the COVID-19 Pandemic: An Overview from the Association of Bioethics Program Directors (ABPD) Task Force
- Positive Public Health Ethics: Toward Flourishing and Resilient Communities and Individuals
- COVID in NYC: What We Could Do Better
- Myopia in Reportability of Ethical Concerns in Healthcare Ethics Consultation
- The Case Against Solicitation of Consent for Apnea Testing
- Engaging Patients and Families in the Ethics of Involuntary Psychiatric Care
- Death Determination and Clinicians’ Epistemic Authority
- Can’t Hit Pause? On the Constitutive Elements of Responsible Ventilator Management & the Apnea Test
- Gaps in Ethics Consultation Support for Patients and Families and Practical Guidance for Future Research or Quality Work Involving These Stakeholders
- Requiring Consent for Brain-Death Testing: A Perilous Proposal
- How to Support Patient and Family in Dealing with Ethical Issues? The Relevance of Moral Case Deliberation
- Informed Consent Should Not Be Required for Apnea Testing and Arguing It Should Misses the Point
- Schrödinger’s Cat and the Ethically Untenable Act of Not Looking
- Broadening the Scope of Health Care Ethics Consultation: A Response to Open Peer Commentaries on Patient and Family Description of Ethical Concerns
- Taking Family-Centered Care Seriously
- Informed Consent for Apnea Testing: Meeting the Standard of Care
- Beyond the Apnea Test: An Argument to Broaden the Requirement for Consent to the Entire Brain Death Evaluation
- Legal and Ethical Considerations for Requiring Consent for Apnea Testing in Brain Death Determination
- The Moral Distress of Patients and Families
- Patient and Family Descriptions of Ethical Concerns
- Accommodating Apnea Testing Not Death Determination Refusal
- Determining Death and the Scope of Medical Obligations
- The Genetic Family as Patient?
- The Apnea Test: Requiring Consent for a Test That is a Self-Fulfilling Prophecy, Not Fit for Purpose, and Always Confounded?
- Shared Decision-Making in the Determination of Death by Neurologic Criteria
- Who Cares About Care? Family Members as Moral Actors in Treatment Decision Making
- Apnea Testing is Medical Treatment Requiring Informed Consent
- Restoring Trust and Requiring Consent in Death by Neurological Criteria
- Response to Open Peer Commentaries “Rethinking the Ethical, Legal, and Clinical Foundations of Informed Consent and Shared Decision-Making for Brain Death Determination”
- Brain Death Testing: Time for National Uniformity
- COVID-19 and Financial Vulnerability: What Health Care Organizations and Society Owe Each Other
- Vexing, Veiled, and Inequitable: Social Distancing and the “Rights” Divide in the Age of COVID-19
- The Value and Ethics of Using Technology to Contain the COVID-19 Epidemic
- Eliminating Categorical Exclusion Criteria in Crisis Standards of Care Frameworks
- Ethical and Sensible Dissemination of Information During the COVID-19 Pandemic
- Rural and Remote Communities: Unique Ethical Issues in the COVID-19 Pandemic
- Potential Implications of Testing an Experimental mRNA-Based Vaccine During an Emerging Infectious Disease Pandemic
- Prioritizing Frontline Workers during the COVID-19 Pandemic
- Should Extremely Premature Babies Get Ventilators During the COVID-19 Crisis?
- COVID-19: Act First, Think Later
- Medically Vulnerable Clinicians and Unnecessary Risk During the COVID-19 Pandemic
- A Model to Be Emulated
- Enlisting the Experts: Experienced Research Participants in Study Planning
- The Two Components of Beneficence and Wellbeing in Medicine: A Restatement and Defense of the Argument
- Guiding Principles of Community Engagement and Global Health Research: Solidarity and Subsidiarity
- Solidarity in Global Health Research—Are the Stakes Equal?
- From Knowing to Understanding: Revisiting Consent
- Is Solidarity Possible in Global Health Policy and Systems Research?
- Peers, Near-Peers, and Outreach Staff to Build Solidarity in Global HIV Research With Adolescents
- Community Empowerment Through Education: The Inherent Foundation of Promoting Solidarity in Global Health Research
- Consent Related Challenges for Neonatal Clinical Trials
- Better Consent—and Not Just for When Time Is Short
- “Living Robots”: Ethical Questions About Xenobots
- The Role of Solidarity in Research in Global Health Emergencies
- Rules of the Road for Patient-Driven Consent Processes
- Empowering Marginalized Communities
- Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships
- Solidarity, Social Risk, and Community Engagement
- Partnering With Research Staff Members to Bridge Gaps in Consent
- ‘Who is (Really) the Focus of Engagement?’ – Evidence From Engagement Research
- Consent in the Acute Setting: A Necessary Evolution
- Sense and Sensibility
- Partnering With Patients to Bridge Gaps in Consent for Acute Care Research
- Solidarity and Community Engagement in Global Health Research
- Reimagining the Goal of Informed Consent to Help Patients Make Decisions About Research
- Ends and Means of Solidarity
- Intersectionality and Community Engagement: Can Solidarity Alone Solve Power Differences in Global Health Research?
- Consent for Acute Care Research and the Regulatory “Gray Zone”
- The COVID-19 Pandemic: Critical Care Allocated in Extremis
- In Response to COVID-19 Pandemic Physicians Already Know What to Do
- Ethical Advocacy Across the Autism Spectrum: Beyond Partial Representation
- Like Autism, Representation Falls on a Spectrum
- Patient Representation: Mind the Gap Between Individual and Collective Claims
- Implementation Science and Bioethics: Lessons From European Empirical Bioethics Research?
- Ethical Training Can Turn an “Ought” to a “Can”
- Beyond Translating Ethical Norms Into Practice: Integrating Implementation and Assessment Mindsets
- Parents of Autistic Children Are Deserving of Support
- Additional Challenges to Fair Representation in Autistic Advocacy
- Implementation Science Can Do Even More for Translational Ethics
- Bioethical Ideals, Actual Practice, and the Double Life of Norms
- Making Ethics Happen: Addressing Injustice in Health Inequalities
- Clearing Muddy Waters: The Need to Reconceptualize Minor Increase over Minimal Risk in Pediatric Rare Disease Research
- An “Implementation Mindset” in Normative Bioethics Will Have Unintended Consequences
- Responsible Innovation For and From Ethical Integration
- Patenting Foundational Technologies: Recent Developments in the CRISPR Patent Struggle
- Representing the Autism Spectrum
- Flexibility Required: Balancing the Interests of Children and Risk in Drug Development for Rare Pediatric Conditions
- Neurodiversity and Autism Advocacy: Who Fits Under the Autism Tent?
- The Feasibility of Implementing Normative Claims That Are Especially Strong and Important
- Ethical Drug Development for Rare Childhood Diseases: When There Are Limited But Promising Data in Adults, How to Choose Between Safety or Efficacy Studies?
- When Higher Risk Does Not Equal Greater Harm: Doing the Most Good in a Limited Pediatric Study Population
- Implementation in Bioethics: A Plea for a Participatory and Dialogical Approach
- Ethical Representation by Patient Advocacy Organizations Also Requires Responsible Management of Potential Financial Conflicts of Interest
- Autistic Self Advocacy in the Developmental Disability Movement
- Autism Advocacy Before and After DSM-5
- Representation Is Never Perfect, But Are Parents Even Representatives?
- Non-Electoral Representation and Promoting Welfare—Beyond Descriptive Representation
- Hope Springs Eternal: Pitfalls of Partial Representation by Advocates Who Only Want the Best
- Beyond Autism: Advocacy for Neurodevelopmental Differences
- A Care Ethics Approach to Ethical Advocacy for Community Conditions
- The Use of Pediatric Extrapolation to Avoid Unnecessary Pediatric Clinical Trials
- Mind the Gap: How Should We Translate Specific Ethical Norms Into Interventions?
- Greater Than Minimal Risk, No Direct Benefit – Bridging Drug Trials and Novel Therapy in Pediatric Populations
- Civic Engagement, Autism and Deliberative Democracy: Prioritizing the Inclusion of Marginalized Perspectives
- Translational Ethics and Challenges Involved in Putting Norms Into Practice
- Using Implementation Science to Enact Specific Ethical Norms: The Case of Code Status Policy
- Balancing Scientific Progress With Pediatric Protections: No Direct Benefit Now, But Potential Novel Therapy in the Future
- Meaningful Fissures: The Value of Divergent Agendas in Patient Advocacy
- Bringing Known Drugs to Pediatric Research: Safety, Efficacy, and the Ambiguous Minor Increase in Minimal Risk
- Balancing Risk and Reward: Greater Research Oversight Is Appropriate for Novel Therapies for Children With Life-Limiting Illness
- The “Ought-Is” Problem: An Implementation Science Framework for Translating Ethical Norms Into Practice
- Reconciling the HEC-C and Clinical Ethics Fellowship Training Programs: Implications of the Baylor Experience
- What the HEC-C? An Analysis of the Healthcare Ethics Consultant-Certified Program: One Year in
- Beneficence, Interests, and Wellbeing in Medicine: What It Means to Provide Benefit to Patients
- To Be Coherently Beneficient, Be Communitarian
- Credentialing Ethics Expertise
- Value Theory, Beneficence, and Medical Decision-Making
- Examining the Doing of Ethics Support Staff. A Dialogical Approach Toward Assessing the Quality of Facilitators of Moral Case Deliberation
- Revisiting Beneficence: What Is a ‘Benefit’, and by What Criteria?
- Worth Our Salt: Reflections of an Early Career Clinical Ethicist
- A Nudge Without a Wink!
- You Kids Get off My Ethics Lawn!: An Admitted Curmudgeonly Critique of Credentialing Individual Clinical Ethics Consultants
- Beneficence in Maternity Care: Objective Aspects of Subjective Goals
- Cost Considerations Within a Duty of Beneficence
- When “Objectivity” in Clinical Benefit is Seen Through Different Lenses
- Virtues and Phronesis: Making Decisions in the Clinical Context
- The Healthcare Ethics Consultant-Certified Program: Fair, Feasible, and Defensible, But Neither Definitive Nor Finished
- First Steps: Inclusive or Exclusive?
- Beneficence and Wellbeing: A Critical Appraisal
- Looking to Other Professions to Advance the Health Care Ethics Consultant Certification Program
- Ensuring Certified Healthcare Ethics Consultants Are Competent to Practice
- Have the Cobbler’s Children Come Home to Roost?
- HEC-C: From Halsted’s Perspective
- A Call for Diversity and Inclusivity in the HEC-C Program
- A Capabilities-Based Account of Wellbeing
- By Various Ways We Arrive at the Same End
- Certification Assesses Minimal Competency for Healthcare Ethics Consultants, But What About Assessing Interpersonal Skills?
- A Profession Without Expertise? Professionalization in Reverse
- Goal-Concordant Care Within the Range of the Possible
- Healthcare Ethics Consultant Certification: The Big Picture
- Decisional Humility and the Marginally Represented Patient
- Upstream Influences and Fair Subject Selection
- Moral Intimacy, Authority, and Discretion
- The Fifth Face of Fair Subject Selection: Population Grouping
- Bolstering Surrogate Decision Making for Marginally Represented and Unrepresented Patients: One System’s Approach and Experience
- Clinical Research Subject Selection during Public Health Disasters: Reconceptualizing Fairness in a Global Ethical Context
- Marginally Represented Patients, Best Interests, and Ends-in-Themselves
- The Challenge of Selecting Participants Fairly in High-Demand Clinical Trials
- Compassionate Care for the Unconscious and Incapacitated
- Context is Needed When Assessing Fair Subject Selection
- Redistributing Fair Subject Selection
- From Solo Decision Maker to Multi-Stakeholder Process: A Defense and Recommendations
- Risk Limits in Fair Subject Selection
- Fair Inclusion and the Pursuit of Robustly Generalizable Clinically Relevant Knowledge
- Epistemic Burdens, Moral Intimacy, and Surrogate Decision Making
- Fair Subject Selection Procedures Must Consider Scientific Uncertainty and Variability in Risk and Benefit Perception
- Four Faces of Fair Subject Selection
- On Surrogates’ Moral Authority: A Reply to Berger
- Addressing the Perceived Duality of Represented and Unrepresented Patients: Legal Findings in a Moral Context
- Marginally Represented Patients and the Moral Authority of Surrogates
- Can the Principles of Research Ethics Help Us Distribute Clinical Resources More Fairly?
- Letter to the Editor: The Necessity of Teaching Medical Students to Voice Their Values
- Improving Comparative Effectiveness Trials
- Response to Open Peer Commentaries on “Misrepresenting ‘Usual Care’ in Research: An Ethical and Scientific Error”
- Traditional, Not the Usual: On Misrepresenting Acute Respiratory Distress Syndrome Network Lower Tidal Volume Trial (ARMA)
- Response to Open Peer Commentaries “Taxonomizing Views of Clinical Ethics Expertise”
- From Epistemic Trespassing to Transdisciplinary Cooperation: The Role of Expertise in the Identification of Usual Care
- Is It Time to Rethink Health Care Ethics?
- The CER Experiment
- Drug Testing Is No Substitute for Honesty or Addiction Risk Reduction
- It Does Not Matter Whether Research Interventions Are Usual Care
- Diverting Opioid Diversion: Does It Justify Randomly Screening Palliative Care Patients?
- “Unusual Care”: Groupthink and Willful Blindness in the SUPPORT Study
- You Can’t Always Get What You Want… We Will Help You Get What You Need
- What Research Ethics (Often) Gets Wrong about Minimal Risk
- Re-envisioning “Doing Everything” for an Infant with Trisomy 18
- The Importance of Describing as Well as Defining Usual Care
- Response to Open Peer Commentaries on “Ethics and Collateral Findings in Pragmatic Clinical Trials”
- Misrepresenting “Usual Care” in Research: An Ethical and Scientific Error
- Randomized Trials are Deeply Offensive
- Ethics and Collateral Findings in Pragmatic Clinical Trials
- Pragmatic Clinical Trial-Collateral Findings: Recognizing the Needs of Low-Resource Research Participants
- Collateral Findings from Pragmatic Clinical Trials: What Responsibility Do We Have to Enrolled and Future Patients?
- The Collateral Finding of What?
- Partial Entrustment in Pragmatic Clinical Trials
- Misuse of “Usual Care” in Emergency Care Research: A Call for Adapting Rules Governing Exception from Informed Consent (EFIC) Studies
- Human Subjects Research Without Consent: Duties to Return Individual Findings When Participation was Non-Consensual
- Ethics and the Importance of Good Clinical Practices
- Let It Be: The Evolving Standard of Care for Trisomy 18
- You’re in…But This Service Requires Drug Testing
- Getting Beneath the Tip of the Iceberg: Suspected Opioid Diversion
- Frontiers in Bioethics
- The Inner Lives of Doctors: Physician Emotion in the Care of the Seriously Ill
- Hopes, Therapeutic Honesty, and Adaptation in the Midst of Dying and Death
- Agency at Life’s End
- Predicting a “Lazarus Effect” in Patients With Advanced Cancer Near the End of Life: Prognostic Uncertainty, Oncologists’ Emotions, and Ethical Questions
- Elisabeth Kübler-Ross as Astrophysicist: Emotional Intelligence and Resilience Unlock the Black Hole of Physician Burnout, Moral Distress, and Compassion Fatigue
- The Premodern Sensibility of Elisabeth Kübler-Ross in a Metamodern Age: What On Death and Dying Means Now
- Elisabeth Kübler-Ross: A Pioneer Thinker, Influential Teacher and Contributor to Clinical Ethics
- Kübler-Ross and Bioethics: A Cautionary Tale
- On Death and Dying at the Beginning of Life: Grieving the Stillborn Baby
- Diverse Approaches to Meaning-Making at the End of Life
- Personal-Professional Boundaries and Ethical Issues in Palliative Care
- Holding On and Letting Go: Anticipatory Grief and Surrogate Choices at the End of Life
- To Cure Sometimes, To Relieve Often, and To Comfort Always*
- Deconstructing Dignity in Elisabeth Kübler-Ross’s On Death and Dying
- The Underappreciated Influence of Elisabeth Kübler-Ross on the Development of Palliative Care for Children
- Cultures Shifts and Added Resources: How the Physician Experience in Caring for the Dying Patient has Evolved
- Exploring the Emotional Labor of Medical Trainees in the Setting of Ethics Education
- Dealing With the Tension Between the Patient’s Wish to Die and Professional Attitudes Toward a ‘Good Death’
- Caring for Dying Children
- On Death & Dying: Revisiting the Roots of Palliative Care and a Path Forward
- Thirty Years Later: An Oncologist Reflects on Kübler-Ross’s Work
- Everything I Really Needed to Know to Be a Clinical Ethicist, I Learned From Elisabeth Kübler-Ross*
- Psychotherapy at the End of Life
- Fifty Years Later: Reflections on the Work of Elisabeth Kübler-Ross M.D.
- Recollections of Dr. Elisabeth Kübler-Ross at the University of Chicago (1965–70)
- Appreciating the Legacy of Kübler-Ross: One Clinical Ethicist’s Perspective
- A Little Digital Help: Advancing Social Support for Transplant Patients With Technology
- Gender Equity and Social Support for Transplants
- Ethicist as Healer: Is Offering Justified Normative Recommendations All We Are Doing in Active Patient Cases?
- Taxonomizing Views of Clinical Ethics Expertise
- Clinical Ethics Expertise: Beyond Justified Normative Recommendations?
- Credibility Excess and Social Support Criterion
- Principles of Biomedical Ethics: Marking Its Fortieth Anniversary
- Justifying Ethical Expertise
- In Search of the Ideal Transplantation Candidate
- The Qualitative Value of Social Support for Liver Transplantation
- Clinical Ethics as a Profession?
- Should Lack of Social Support Prevent Access to Organ Transplantation?
- A Review of David Lemberg’s Ethical and Legal Issues in Healthcare (1st Edition)
- Augment Social Support for Transplant, Do Not Penalize Its Absence
- Should Lack of Family Social Support Be a Contraindication to Pediatric Transplant?
- Ethics Expertise Demystified: Using the Brummett/Salter Taxonomy
- Realism, and Expertise1
- Realism, Correspondence, and Expertise
- Social Support Is Not the Only Problematic Criterion, But If Used at All, “Lack of Social Support” Should Count in Favor of Listing, Not Against
- Engaging With a New Taxonomy for Clinical Ethics Consultation: What Are the Implications?
- Taxonomizing the Clinical Ethics Critics
- Why It is Important to Consider Social Support When Assessing Organ Transplant Candidates?
- Unanswered Questions About Clinical Ethics Expertise
- Moral Normative Force and Clinical Ethics Expertise
- Context, Context, Context
- How Is Ethics Consultation Work Justified?
- Clinical Ethics Expertise as the Ability to Co-Create Normative Recommendations by Guiding a Dialogical Process of Moral Learning
- Ethics of AI in Transplant Matching: Is It Better or Just More of the Same?
- The Hard Question of Justification in Health Care Ethics Consultation
- Should Poor Social Support Be an Exclusion Criterion in Bone Marrow Transplantation?
- A Taxonomy and an Ethicist’s Toolbox: Mapping a Plurality of Normative Approaches
- Absence of Evidence Is Not Evidence of Absence
- Parity Arguments for ‘Physician Aid-in-Dying’ (PAD) for Psychiatric Disorders: Their Structure and Limits
- Euthanasia for Mental Suffering Reduces Stigmatization But May Lead to an Extension of This Practice Without Safeguards
- Reweighing the Ethical Tradeoffs in the Involuntary Hospitalization of Suicidal Patients
- Physician Aid-in-Dying for Individuals With Serious Mental Illness: Clarifying Decision-Making Capacity and Psychiatric Futility
- Improving Care for Suicidal Patients While Protecting Human Subjects: Addressing Ethical Challenges in Mental Health Research Involving Emergency Medical Services Providers
- Moralities of Method: Putting Normative Arguments in Their (Social and Cultural) Place
- Responding to Implicit Bias in Abusive Head Trauma Evaluations and Reporting in the PICU: Ethical Consideration During a Clinical Trial
- The Moral Choices on CRISPR Babies
- The Genetic Revolution Highlights the Importance of Nondiscriminatory and Comprehensive Health Insurance Coverage
- Why Normative Judgment Is Inescapable
- TV Writers and Producers and Ethics: How Can I Help?
- Evaluating PAD Requests in Psychiatry: The Importance of Involving Others
- Clinical Trials Not Causing Harm With Potential for Realizing Benefit Should Continue
- Informed Consent in a Pragmatic Emergency Suicide Trial: Rejecting the Research–Practice Distinction
- Review of Thomas H. Murray, Good Sport: Why Our Games Matter and How Doping Undermines Them
- A Stepwise Approach to Ethically Assess Pragmatic Cluster Randomized Trials: Implications for Informed Consent for Suicide Prevention Implementation Research
- Issues of Justice and Risk: Setting Stopping Criteria in Cluster-Randomized Trials
- What If They Say No?
- Involuntary Hospitalization of Suicidal Patients: Time for New Answers to Basic Questions?
- Decision-Making Capacity Will Have a Limited Effect on Civil Commitment Practices
- A Cluster Randomized Trial to Screen for Abusive Head Trauma in the Pediatric Intensive Care Unit—How to Manage Site-Specific Evidence of Racial/Ethnic Disparity
- Kious and Battin’s Dilemma Resolved: Outlaw Physician Aid-in-Dying
- The Ethics of Nudging and Beyond: Response to Commentaries
- Elevating How Americans Talk About Abortion: Review of Katie Watson’s Scarlet A
- Response to Open Peer Commentaries on “Physician Aid-in-Dying and Suicide Prevention in Psychiatry”
- “When the Fall Is All There Is…”: Refocusing on the Critical (Unique?) Characteristic of “Dying” in Physician Aid-in-Dying
- Medical Aid-in-Dying is an Ethical and Important End-of-Life Care Option
- Deep Uncertainties in the Criteria for Physician Aid-in-Dying for Psychiatric Patients
- Concerning the Basic Idea that the Wish to End Suffering Legitimates Physician Aid in Dying for Psychiatric Patients
- Medically Unnecessary Genital Cutting and the Rights of the Child: Moving Toward Consensus
- A Model Ethics Board for Innovative Practice and Centers of Excellence
- Physician Aid-in-Dying and Suicide Prevention in Psychiatry: A Moral Crisis?
- Physician Aid-in-Dying and Suicide Prevention in Psychiatry: A Moral Imperative Over a Crisis
- The Unbearable Burden of Suffering: Moral Crisis or Structural Failure?
- “I Don’t Want to Go on Living This Way”: Desire for Hastened Death and the Ethics of Involuntary Hospitalization
- When a Theoretical Commitment to Broad Physician Aid-in-Dying Faces the Reality of Its Implementation
- Social Determinants of Mental Health and Physician Aid-in-Dying: The Real Moral Crisis
- A Pragmatic Trial of Suicide Risk Assessment and Ambulance Transport Decision Making Among Emergency Medical Services Providers: Implications for Patient Consent
- Taking Off the Blinders: The Critical Phase of Suicidality Doesn’t End With Discharge From Inpatient Treatment
- Irremediability Is Key
- The Ethics of Suicide in Mental Illness: Novel Neuroscientific Perspectives
- A Pragmatic Trial for Emergency Medical Service Providers’ Prehospital Response to Suidality: Consent Is Not Essential, but Limited Patient Engagement May Be Meaningful
- Partnering, Not Enduring: Citizen Science and Research Participation
- Consent, Threats, and Offers
- Freedom From Subjection to the Will of Others: Study Payments, Labor, and Moral Equality
- Research Payment and Its Social Justice Concerns
- “Paid to Produce Data:” Research Participation as the Labor of Generating Valuable Health Data
- Is Being “Paid to Endure” Compatible With Autonomy? Paid Research Participation and Five (Rather Than Four) Goods of Work
- A Proposal for Fair Compensation for Research Participants
- The Continued Complexities of Paying Research Participants
- Meaningful Work Is Indeed a Matter of Distributive Justice
- Licensing Domination: Foreign Will and Social Benefit
- Clinical Ultimatums: Coercion as Subjection
- Filthy Lucre or Fitting Offer? Understanding Worries About Payments to Research Participants
- Working for the Weekend Is Not Meaningful Work
- The Coercer’s Role in Coercion
- Coercive Offers Without Coercion as Subjection
- Coercion as Subjection and the Institutional Review Board
- Passivity, Research Risks, and Worker-Type Protections for Research Subjects
- The Exploitation of Professional “Guinea Pigs” in the Gig Economy: The Difficult Road From Consent to Justice
- Institutional Review Boards (IRBs) Render “Coercion as Subjection” Implausible
- Response to Open Peer Commentaries on “‘Paid to Endure’: Paid Research Participation, Passivity, and the Goods of Work”
- Why Dax’s Case Still Matters
- Teaching Medical Students to Voice Their Values
- “Paid to Endure”: Paid Research Participation, Passivity, and the Goods of Work
- How Payment for Research Participation Can Be Coercive
- The Ethics of Public and Service User Involvement in Health Research: The Need for Participatory Reflection on Everyday Ethical Issues
- Learning Not Just From But With Citizens: The Importance of Co-Design in Health-Related Social Research
- Should Patient Groups Have the Power to Redirect How Their Samples Are Used?
- Engaging the “Citizen” in Citizen Science: Who’s Actually Included?
- The Challenge of Demandingness in Citizen Science and Participatory Research
- Challenges of Citizen Science: Commons, Incentives, Organizations, and Regulations
- The Importance of Gatekeeping in Citizen Science
- Institutional Review Board Oversight of Citizen Science Research Involving Human Subjects
- Considering Power Relations in Citizen Science
- Biomedical Citizen Science or Something Else? Reflections on Terms and Definitions
- Citizen Science and the Politicization of Epistemology
- The Rise of Citizen Science in Health and Biomedical Research
- Co-Production: An Ethical Model for Mental Health Research?
- A Neglected Ethical Issue in Citizen Science and DIY Biology
- Beyond Belmont—and Beyond Regulations
- Parsing the Line Between Professional and Citizen Science
- Who Watches the Step-Watchers: The Ups and Downs of Turning Anecdotal Citizen Science into Actionable Clinical Data
- Ethically Justified Restrictions on Citizen Science: A Perspective from Singapore
- Citizen Science for Biomedical Research and Contributive Justice
- Cultural Considerations in Citizen Health Science and the Case for Community-Based Approaches
- N-of-1 Precision Medicine and Research Oversight
- Avoiding a Tyranny of the Majority: Public Deliberation as Citizen Science, Sensitive Issues, and Vulnerable Populations
- Mind the Gap: The Ethics Void Created by the Rise of Citizen Science in Health and Biomedical Research