- No Place like (Dying at) Home: Supporting Patients’ Desires to Die without Medical Intrusion
- Georgia on My Mind: Daughters, Dementia and Discharge
- When Parents Don’t Want Their Teenager to be Vaccinated against COVID-19, Who Calls the Shots?
- Until Adolescents Can Consent for Vaccination, Protecting Them from COVID-19 Will Require Counseling Skeptical Parents
- A Minor Question of Vaccine Consent: Not for Ethics Alone to Answer
- Preference vs. Safety: Clinician and Caregiver Stress in the Care of Demented Patients
- Governance of Emerging Biotechnologies: Lessons from Two Chinese Cases
- There Are Priorities and Then There Are Priorities: A Prior Question About the Perpetuation of Injustice Through Bioethics Research Funding
- Anticipatory Governance and Foresight in Regulating for Uncertainty
- How Ethics Can Better Anticipate the Consequences of Emerging Biotechnologies
- Bioethics Must Exemplify a Clear Path toward Justice: A Call to Action
- Whose Neglect? Exploring Patient and Caregiver Boundaries in Advanced Dementia
- Amplifying the Call for Anticipatory Governance
- Put Your Money Where Your Mouth Is: How Bioethics Can Learn from Organized Medicine
- “I Can Decide for Myself:” Adolescents Who Wish to Consent for Covid-19 Vaccination
- The Need for “Big Bioethics” Research
- Undoing Funding Injustices for Bioethics Research on Racial Justice
- A RAD Approach to iBlastoids with a Moral Principle of Complexity
- How to Identify Priority Questions for Bioethics Research
- Why iBlastoids (Embryo-like Structures) Do Not Rise Significant Ethical Issues
- Supported Decision Making with People at the Margins of Autonomy: Response to Commentaries
- Injustice in Bioethics Research Funding: Going Further Upstream
- A New Dawn of Bioethics: Advocacy and Social Justice
- Diversifying the Bioethics Funding Landscape: The Case of TMS
- Social and Epistemic Justice: Are We Really Including Africa in the Bioethics Discourse?
- Integrating Equity Work throughout Bioethics
- Meeting the Moment: Bioethics in the Time of Black Lives Matter
- Non-Invasive Prenatal Testing for “Non-Medical” Traits: Ensuring Consistency in Ethical Decision-Making
- Dementia, Frailty and Triage in a Pandemic
- Another Cautionary Lesson from COVID Research
- Avoiding Exceptionalism and Silver Bullets: Lessons from Public Health Ethics and Alzheimer’s Disease
- What Can We Learn from COVID-19 Drug Development and Access for Non-Pandemic Diseases? A Chinese Perspective
- Why Exceptional Public Investment in the Development of Vaccines Is Justified for COVID-19, But Not for Other Unmet Medical Needs
- Exceptionalism, Information Categories and the Relevance of Gender
- Please, Don’t Fly Me to the Moon
- Whose Data, Whose Risk? Omics Privacy Concerns Should be Defined by Individuals, not Researchers
- Scrutinizing Privacy in Multi-Omics Research: How to Provide Ethical Grounding for the Identification of Privacy-Relevant Data Properties
- Decisions on Innovation or Research for Devastating Disease
- From “Ought” to “Is”: Surfacing Values in Patient and Family Advocacy in Rare Diseases
- Whose Data Are They Anyway? Identification of Relatives and Genetic Exceptionalism
- Data Properties or Analytical Methodologies: Too Much Attention to the Former Ignores Concerns About the Latter
- Physician Responsibility to Discuss Palliative Unproven Therapies With Out-of-Option Patients
- Is Dupras and Bunnik’s Framework for Assessing Privacy Risks in Multi-Omic Research and Databases Still Too Exceptionalist?
- Ownership of Genetic Data: Between Universalism and Contextualism?
- “If It’s Ethical During a Pandemic…”: Lessons from COVID-19 for Post-Pandemic Biobanking
- Utilitarian Lessons from the COVID-19 Pandemic for Non-Pandemic Diseases
- Realizing Supported Decision-Making: What It Does—and Does Not—Require
- Implementing Ethical and Legal Supported Decision Making: Some Unresolved Issues
- Doing Justice to Patients with Dementia in ICU Triage
- Supported Decisions as the Patient’s Own?
- Disability, Aging, and the Importance of Recognizing Social Supports in Medical Decision Making
- The Frailty of Disability: A Controversial Triage Criterion
- Integrating Supported Decision-Making into the Clinical Research Process
- Triage: Medical Details and Words Matter
- Triage Criteria: Medically, Ethically or Socially Defined?
- Supported Decision Making: A Concept at the Margins vs. Center of Autonomy?
- The Doctrine of Informed Consent Doesn’t Need Modification for Supported Decision Making
- Frailty, an Imperfect ICU Rationing Criterion
- The Complex Relationship between Disability Discrimination and Frailty Scores
- Healthcare Decisions Are Always Supported Decisions
- The Other Side of Triage: When Access to Intensive Care Measures May Do More Harm than Good
- A Critique of the Use of the Clinical Frailty Scale in Triage
- Reconciling Supported Decision Making with Shared Decision Making in the Context of Potential Vulnerability
- Supported Decision-Making for People with Dementia Should Focus on Their Values
- Evaluating Tradeoffs between Autonomy and Wellbeing in Supported Decision Making
- Combining Supported Decision-Making with Competence Assessment: A Way to Protect Persons with Impaired Decision-Making Capacity against Undue Influence
- Helpful Lessons and Cautionary Tales: How Should COVID-19 Drug Development and Access Inform Approaches to Non-Pandemic Diseases?
- Is It Ethical to Mandate SARS-CoV-2 Vaccinations among Incarcerated Persons?
- Developing a Reflexive, Anticipatory, and Deliberative Approach to Unanticipated Discoveries: Ethical Lessons from iBlastoids
- Identity and Liberalism in Public Health: A Response to the Open Peer Commentaries
- Ethical Issues in Using Behavior Contracts to Manage the “Difficult” Patient and Family
- Community Partnered Participatory Research in Southeast Louisiana Communities Threatened by Climate Change: The C-LEARN EXPERIENCE
- Methodological and Ethical Risks Associated with the Epistemic Unification of Tribe Members
- Rethinking Research Protections for Tribal Communities
- Engaging the Sickle Cell Community in Participatory Research
- Chickens & Eggs, Pigs and Their Lipstick: The Trouble with Asking Principlism to Do Too Much
- Beyond the Belmont Report
- Deliberative Forums to Bolster Tribal Self-Determination
- When Professional Meets Personal: How Should Research Staff Advertise on Social Media for Research Opportunities?
- Sharing Research Opportunities on Personal Social Media Accounts and Fair Subject Selection
- Leveraging Academic Institutional Structures to Support Asian American Community Organizations’ Engagement in Research: The Korean Community Service Center
- How Should Investigators Advertise on Social Media for Research Opportunities?
- Considering “Respect for Sovereignty” Beyond the Belmont Report and the Common Rule: Ethical and Legal Implications for American Indian and Alaska Native Peoples
- Solidarity without Sovereignty: Extending the Belmont Principles Further?
- Solidarity in the Absence of Sovereignty: Expanding Group Protections in New Research Contexts
- Supporting Community-Academic Research Partnerships: Reflections from the Ground
- Group Solidarity Versus Individual Autonomy in Research Involving American Indian/Alaskan Native Communities
- Health-Related Digital Autonomy. A Response to the Commentaries
- Solidarity as an Aspirational Basis for Partnership with Tribal Communities
- Being in Good Community: Engagement in Support of Indigenous Sovereignty
- Solidarity: A Missing Component of Research Ethics
- Teaching about Health Disparities: Pedagogy, Curriculum, and Learning Theory
- Liberalism and Identity
- The Current State of Efforts to Address Disparities, Racism and Cultural Humility in Medical Education
- Grounding Medical Education in Health Equity: The Time is Now
- Health Disparities, Systemic Racism, and Failures of Cultural Competence: Authors’ Response to Commentaries
- Cultural Competence as New Racism: Working as Intended?
- Materializing Systemic Racism, Materializing Health Disparities
- Making Culture a Verb: Implications for Health Equity
- Disability Cultural Competence for All as a Model
- Reasons, Respect, and Identity in Public Health Decision Making
- The Disruptive Power of Intersectionality
- Global Health Disparities: Can Liberal Perfectionism Better Address the Problem?
- Trading Cultural Competency for Trauma Informed Care
- Political Liberalism and Public Health
- Bans, Taxes or Product Placement? Applying the Liberal Perfectionist Proviso to Public Health Food Policy
- Improving Community Engagement and Social Justice in Public Health Policymaking during the COVID Pandemics: Insights from Participatory Action-Research in Western Switzerland
- Bioethics Theory-Building for Public Health
- Three Kinds of Decision-Making Capacity for Refusing Medical Interventions
- Limitations to Contingency Measures: Reflections from COVID-19 Surges in the UK
- Contingency Measures During the COVID-19 Pandemic in China: An Analysis Based on a New Ethical Framework
- Neither ‘Crisis Light’ nor ‘Business as Usual’: Considering the Distinctive Ethical Issues Raised by the Contingency and Reset Phases of a Pandemic
- Does Medicine Need to Accommodate Positive Conscientious Objections to Morally Self-Correct?
- Conscience Clauses and Ideological Bias
- Justified Asymmetries: Positive and Negative Claims to Conscience in Reproductive Health Care
- Conscience Claims and Cost: Tribunals and the Asymmetry Debate
- Insights from Blood Products Management for Pre-Crisis Ethical Resource Allocation
- What Makes Conscientious Refusals Concerning Abortion Different
- The Need for an Ethics of Care in the Contingency Response to Public Health Emergencies
- A Real-World Ethical Analysis of Contingency Measures Enacted for Crisis Standards of Care during the COVID-19 Pandemic
- Standard Racism: Trying to Use “Crisis Standards of Care” in the COVID-19 Pandemic
- The Divided Principle of Justice: Ethical Decision-Making at Surge Capacity
- Addressing a Missing Link in Emergency Preparedness: New Insights on the Ethics of Care in Contingency Conditions from the Minnesota COVID Ethics Collaborative
- Putting the Asymmetry Debate in Its Place
- Justifying Positive Appeals to Conscience: The Debate We Can’t Avoid
- Finding Our Balance in the Asymmetry Debate
- Supporting Real-Time Ethical Deliberation in Contingency Capacity During the COVID-19 Pandemic
- Ethically Navigating the Murky Waters of “Contingency Standards of Care”
- Medical Disobedience and the Conscientious Provision of Prohibited Care
- Ethics Frameworks and Beyond—Advancing Our Understanding of the Contingency Phase to Improve Health Care Quality During Public Health Emergencies
- The Wrong Argument for a Bad Law
- Harmful Choices, the Case of C, and Decision-Making Competence
- Pathways to Drug Liberalization: Racial Justice, Public Health, and Human Rights
- The Place of Philosophy in Bioethics Today
- When All the PICU’s a Platform
- Bridging the Divide between a Patient’s Blog and the Staff’s Privacy
- Patient Rights to Publicity versus Provider Rights to Privacy: Striking a Balance When Blogging in the Medical Setting
- Artificial Intelligence, Social Media, and Suicide Prevention: Principle of Beneficence Besides Respect for Autonomy
- “Thanks Doc, But I Prefer to Stay” ̶ Finding Our Way Out of Contentious Hospital Discharge Planning
- Defending, Improving, Expanding, and Applying a Moral-Metaphysical Proceduralism for Secular Clinical Ethics
- Palliative Psychiatry for Severe and Enduring Anorexia Nervosa Includes but Goes beyond Harm Reduction
- Consultation with Doctor Twitter: Consent Fatigue, and the Role of Developers in Digital Medical Ethics
- AIDD, Autonomy, and Military Ethics
- Harm Reduction Models: Roadmaps for Transformative Experiences
- Health-Related Digital Autonomy: An Important, But Unfinished Step
- Neuroscience Missing in Action
- Four Stages in Social Media Network Analysis—Building Blocks for Health-Related Digital Autonomy in Artificial Intelligence, Social Media, and Depression
- Black Boxes and Bias in AI Challenge Autonomy
- Reconceptualizing ‘Psychiatric Futility’: Could Harm Reduction, Palliative Psychiatry and Assisted Dying Constitute a Three-Component Spectrum of Appropriate Practices?
- Error, Reliability and Health-Related Digital Autonomy in AI Diagnoses of Social Media Analysis
- The Coercive Potential of Digital Mental Health
- A New Type of ‘Greenwashing’? Social Media Companies Predicting Depression and Other Mental Illnesses
- Is Health-Related Digital Autonomy Setting the Autonomy Bar Too High?
- The Right to Contest AI Profiling Based on Social Media Data
- Why Defend Harm Reduction for Severe and Enduring Eating Disorders? Who Wouldn’t Want to Reduce Harms?
- Do You Follow Me? Limits to Posting on PICU Patient’s Blog
- A Different Type of “Against Medical Advice”: When Patients Refuse Discharge
- Assessing Risk and Supportive Care for a Hospital Discharge Refusal
- Response to Open Peer Commentaries on “Informed Consent: What Must Be Disclosed and What Must Be Understood?”
- When a Chronically Ill Patient Disagrees with the Discharge Recommendation: The Limits of Patient Autonomy
- An Anatheistic Wager for Bioethics
- Navigating Contested Harms and Competing Metaphysics: Humility and Ethics Consultation
- Design Bioethics and Digital Research Creep
- Powers and Perils
- Principles over Propositions: Or, How to Reject Metaphysical Neutrality in Bioethics
- Advancing Methods in Empirical Bioethics: Bioxphi Meets Digital Technologies
- Design Bioethics, Not Only as a Research Tool but Also a Pedagogical Tool
- What about Ethics in Design Bioethics?
- Strangers at the Altar
- Design Justice for Design Bioethics
- “Let’s Test Crazy Ideas!” A Laboratory for Experimental Bioethics
- Ontology: A Bridge between Bioethics and Data-Driven Inquiry
- Focusing on Neutrality When Resolving Religious Conflicts in Pediatric Medical Care
- Metaphysics, Reason, and Religion in Secular Clinical Ethics
- Bioethicist as Partisan Ideologue
- The Costs of Purposeful Games: When Building a Tool Means Building a Market
- Between Usual and Crisis Phases of a Public Health Emergency: The Mediating Role of Contingency Measures
- Postponed Withholding: Balanced Decision-Making at the Margins of Viability
- Health Disparities, Systemic Racism, and Failures of Cultural Competence
- Preparing for the Next Generation of Ethical Challenges Concerning Heritable Human Genome Editing
- Lies of Omission and Commission, Providing and Withholding Treatment, Local and Global Autonomy – There Are Reasons for Clinical Ethicists to Attend to All of These Distinctions
- Informed Consent, Understanding, and Trust
- Ethicists’ Deception: Theory, Role, Concepts, and Applications
- More than Conveying Information: Informed Consent as Speech Act
- Varieties of Minimalism about Informed Consent
- Why Truthfulness is the First of the Virtues
- Truth and Communication in Ethics Consultation
- Trust, Transparency, and Trauma Informed Care
- Lying is Not an Option for Clinical Ethics Consultants
- Deceptive Omissions, Half-Truths, and the Moral Exemplar in Clinical Ethics
- Hare’s Archangel, Human Fallibility, and Utilitarian Justification(?) of Deception
- Lies, Damned Lies, and Bioethicists
- Should the Clinical Ethicist Document Her Complicity in Intentional Deception?
- When Does Nudging Represent Fraudulent Disclosure?
- Promoting Disclosure and Understanding in Informed Consent: Optimizing the Impact of the Common Rule “Key Information” Requirement
- Utilizing Community Research Committees to Improve the Informed Consent Process
- When First We Practice to Deceive
- Informed Consent Conversations: Neither the Beginning nor the End
- The Grounds of the Disclosure Requirement for Informed Consent
- Controversial Analysis of “Deception” Prevents Adequate Moral Analysis
- Why Have Uniform Informed Consent Documents When the Research Volunteers Are So Diverse?
- Chinese Clinical Ethicists Accept Physicians’ Benevolent Deception of Patients
- Falling on One’s Sword for Truth: Deception by Ethicist Should Be Narrow
- Human Germline Genome Editing: On the Nature of Our Reasons to Genome Edit
- E-Cigarettes and the Multiple Responsibilities of the FDA
- Neutrality and Perfectionism in Public Health
- Some Contributions on How to Formulate Drug Policies and Provide Evidence-Based Regulation
- Ending the War on Drugs: Public Attitudes and Incremental Change
- Fostering Relationships in Pediatric Oncology Research: A Relational Ethics Approach to Clinically Integrated Research
- Acknowledging Angst: Research Ethics Consultation in Disclosing Experimental Research Results of Uncertain Benefit
- Ending the War on People with Substance Use Disorders in Health Care
- Risks to Relationships in Kidney Transplant Research with Living Donors and Recipients
- The Underdeveloped “Gift”: Ethics in Implementing Precision Medicine Research
- “Second Chance” Mechanisms as a First Step to Ending the War on Drugs
- Ending the War on Drugs Requires Decriminalization. Does It Also Require Legalization?
- “It’s a War on People …”
- Racial Justice and Economic Efficiency Both Require Ending the War on Drugs
- The Importance of Rights to the Argument for the Decriminalization of Drugs
- The “War on Drugs” Affects Children Too: Racial Inequities in Pediatric Populations
- Drug Legalization is Not a Masterstroke for Addressing Racial Inequality
- Beyond Decriminalization: Ending the War on Drugs Requires Recasting Police Discretion through the Lens of a Public Health Ethic
- A Value-Oriented Framework for Precision Medicine
- Reciprocity’s Baggage
- Relieving Investigator Angst After an Appropriate But Concerning Ethics Consultation
- Response to Open Peer Commentaries: Distinguishing the “Gift” from “Donation” as a Path toward Reciprocity and Relational Ethics
- Ending the War on Drugs Is an Essential Step Toward Racial Justice
- Ending the War on Drugs Need Not, and Should Not, Involve Legalizing Supply by a For-Profit Industry
- Legalization of Drugs and Human Flourishing
- Supporting Investigators in Challenging Cases: Unease in the Face of an Ethically Appropriate Action
- Gift, Reciprocity and Learning Health Systems
- Aporia of the Gift: Precision Medicine’s Obligations Without Expectations
- Conjoined Consent: Informed Consent When Donor and Recipient Are Both Research Participants
- Responsible Research with Human Tissues: The Need for Reciprocity Toward Both Collectives and Individuals
- Precision Medicine, Data, and the Anthropology of Social Status
- Respecting Donor-Recipient Relationships in Research Decision-Making Commentary on: When Living Donor and Kidney Transplant Recipient Are Both Research Subjects
- Experiences at a Federally Qualified Health Center Support Expanded Conception of the Gifts of Precision Medicine
- We Have “Gifted” Enough: Indigenous Genomic Data Sovereignty in Precision Medicine
- Moving Beyond Standard Informed Consent for Interventional Organ Transplant Research
- Researchers Experience Moral Distress Too!
- The Gift in Precision Medicine: Unwrapping the Significance of Reciprocity and Generosity
- Ethics Consultation in U.S. Hospitals: A National Follow-Up Study
- Ethics Consultation in U.S. Hospitals: Determinants of Consultation Volume
- Ethics Consultation in U.S. Hospitals: Opinions of Ethics Practitioners
- An Open Dialogue on Health Disparities and Structural Racism: Response to Open Peer Commentaries
- Looking Forward: A Response to Commentaries on “Race, Power and COVID-19: A Call for Advocacy within Bioethics”
- Plumbing the Depths of Ethical Payment for Research Participation
- Trauma Informed Ethics Consultation
- Acquiescence is Not Agreement: The Problem of Marginalization in Pediatric Decision Making
- Two Minds, One Patient: Clearing up Confusion About “Ambivalence”
- Time to Professionalize Service to Research? Pay Nothing or Full Wage for Labor
- Race, Racism, and Structural Injustice: Equitable Allocation and Distribution of Vaccines for the COVID-19
- Review of Bioethics in Action Baylis, Francoise and Dreger, Alice, eds. Bioethics in Action. Cambridge: Cambridge University Press, 2018. vii + 177 pp. $29.00 (978-1107543935)
- Dear President Biden: We Need a Truth and Reconciliation Commission
- Reifying Racism in the COVID-19 Pandemic Response
- Research Participants Should Be Rewarded Rather than “Compensated for Time and Burdens”
- Considering the Importance of Context for Ethical Practice on Reimbursement, Compensation and Incentives for Volunteers in Human Infection Controlled Studies
- Paying the Right Amount to Challenge Trial Participants – We Need to Use Behavioral Science Insights to Sell What’s Right
- What Fairness Demands: How We Can Promote Fair Compensation in Human Infection Challenge Studies and Beyond
- Promoting Ethical Payments in Human Challenge Studies Conducted in LMICs: Are We Asking the Right Questions?
- The Role of Race in Pandemic Vaccine Allocation
- Structural Racism in the COVID-19 Pandemic: Don’t Forget about the Children!
- Health Equity and the Public Health Code of Ethics: Rebuilding Trust from the COVID-19 Pandemic
- Truth and Reconciliation of Racial and Ethnic Health Disparities: A Case Study of COVID-19
- Incentive Payments and Research Related Risks—No Reason to Change
- Addressing COVID-19 Health Disparities & Latinidad
- Paying for Fairness? Incentives and Fair Subject Selection
- A Call for Radical Transparency regarding Research Payments
- Latinos and Structural Racism
- What’s True in Truth and Reconciliation? Why Epistemic Justice is of Paramount Importance in Addressing Structural Racism in Healthcare
- The Birth of Injustice: COVID-19 Hospital Infection Control Policy on Latinx Birth Experience
- The Invisibility of Asian Americans in COVID-19 Data, Reporting, and Relief
- Equitable Access to Research Benefits: Considerations for COVID-19 Vaccine Development and Clinical Trial Crossover
- Promoting Ethical Payment in Human Infection Challenge Studies
- Against the Reification of Race in Bioethics: Anti-Racism without Racial Realism
- Counteracting COVID-19 Healthcare Inequity: Supporting Antiracist Practices at Bedside
- Race and Power at the Bedside: Counter Storytelling in Clinical Ethics Consultation
- Transforming Bioethics: The Need for Strong Objectivity and Standpoints
- Addressing Racism in Medicine Requires Tackling the Broader Problem of Epistemic Injustice
- The White Coat: A Counter Narrative
- True Colors: Whiteness in Bioethics
- Updating Race-Based Risk Assessment Algorithms in Clinical Practice: Time for a Systems Approach
- Putting Anti-Racism into Practice as a Healthcare Ethics Consultant
- Systemic Racism in America and the Call to Action
- To What Extent Are Calls for Greater Minority Representation in COVID Vaccine Research Ethically Justified?
- Black Women and Babies Matter
- Racial Injustice and Meaning Well: A Challenge for Bioethics
- Race-Conscious Bioethics: The Call to Reject Contemporary Scientific Racism
- Beyond the Medical Model: Retooling Bioethics for the Work Ahead
- It’s Time for a Black Bioethics
- Racism, Broadly Speaking, and the Work of Bioethics: Some Conceptual Matters
- Beyond Seeing Race: Centering Racism and Acknowledging Agency Within Bioethics
- Can a Global Bioethical Lens Engender Color Blindness? An Examination of Public Health Disasters
- Counternarrative Themes
- The Loud Silence of Racism: It is Killing Us All
- COVID-19 is Not a Story of Race, but a Record of Racism—Our Scholarship Should Reflect That Reality
- Bioethics as Engaged Activity
- From Paternalism to Engagement: Bioethics Needs a Paradigm Shift to Address Racial Injustice During COVID-19
- How to Eliminate Racism in Health Care: Building Diversity Competency in a Regional Health Authority in Canada
- Bioethics Advocacy in Ethos, Practice and Metrics
- Addressing Meso-Level Mechanisms of Racism in Medicine
- Design Bioethics: A Theoretical Framework and Argument for Innovation in Bioethics Research
- Bioethics, (Funding) Priorities, and the Perpetuation of Injustice
- Informed Consent: What Must Be Disclosed and What Must Be Understood?
- Implementing Expanded Prenatal Genetic Testing: Should Parents Have Access to Any and All Fetal Genetic Information?