- Informed Consent: What Must Be Disclosed and What Must Be Understood?
- Implementing Expanded Prenatal Genetic Testing: Should Parents Have Access to Any and All Fetal Genetic Information?
- A New Ethical Framework for Assessing the Unique Challenges of Fetal Therapy Trials
- Extending Research Protections to Tribal Communities
- Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases
- Racial Justice Requires Ending the War on Drugs
- Unjustified Asymmetry: Positive Claims of Conscience and Heartbeat Bills
- Artificial Intelligence, Social Media and Depression. A New Concept of Health-Related Digital Autonomy
- Deception and the Clinical Ethicist
- A Sickle-Cell Patient Displaced by the Pandemic: Is a Request for Opioids Legitimate, or Sign of a Deeper Problems?
- The Moral Relevance of Humanization
- In Science We Trust? Being Honest About the Limits of Medical Research During COVID-19
- Standardize or Adapt? Treatment Diversity as an Ethical Issue
- Relational Autonomy in an Era of Limited Visitation: What’s a Son, Mother, and Medical Team to Do?
- Human Brain Surrogates Research: The Onrushing Ethical Dilemma
- Self-Defeating Codes of Medical Ethics and How to Fix Them: Failures in COVID-19 Response and Beyond
- A Review of “Love Drugs: The Chemical Future of Relationships”
- Response to Open Peer Commentaries for “There’s No Harm in Talking: Reestablishing the Relationship Between Theological and Secular Bioethics”
- Codes of Ethics, Human Rights and Forced Migration
- Philosophy is Still Missing from the Human-Mouse Chimera Debate
- The Centrality of Relational Autonomy and Compassion Fatigue in the COVID-19 Era
- When Doctors Refuse to Prescribe Opiates to a Patient in Pain: How Healthcare Ethics Consultants Can Be Most Effective
- “I’m in Pain; Why Don’t You Believe Me?” Pain Management in Sickle Cell Disease
- A Crisis of Compromised Companionship in the Time of COVID-19
- Justice and the Ethical Response to Suffering
- Broadening the Scope of Moral Responsibility of Clinicians: What Medical Ethics Can Learn from Public Health Ethics
- Communication as Compassion
- Brain Surrogates—Empty or Full Makes the Difference
- The Duty to Support Learning Health Systems: A Broad Rather than a Narrow Interpretation
- Don’t Blame Hippocrates for Low Enrollment in Clinical Trials
- Cracking the Code: COVID-19 and the Future of Professional Promises
- Responding to Human Brain Surrogates Research: The Value of Empirical Ethics
- Expert Communication and the Self-Defeating Codes of Scientific Ethics
- The Consequences of Access to Unproven Treatments: Medical Ethics Didn’t Create the Problem, and It Isn’t the Solution
- Against the Precautionary Approach to Moral Status: The Case of Surrogates for Living Human Brains
- Testing the Correlates of Consciousness in Brain Organoids: How Do We Know and What Do We Do?
- Scientific and Ethical Uncertainties in Brain Organoid Research
- Human Brain Surrogates: Models or Distortions?
- Secular Clinical Ethicists Should Not Be Neutral Toward All Religious Beliefs: An Argument for a Moral-Metaphysical Proceduralism
- Supported Decision Making With People at the Margins of Autonomy
- The Ethical Defensibility of Harm Reduction and Eating Disorders
- From Reciprocity to Autonomy in Physician-Assisted Death: An Ethical Analysis of the Dutch Supreme Court Ruling in the Albert Heringa Case
- Structural Racism in the COVID-19 Pandemic: Moving Forward
- Obligations of the “Gift”: Reciprocity and Responsibility in Precision Medicine
- Racism and Bioethics: The Myth of Color Blindness
- Race, Power, and COVID-19: A Call for Advocacy within Bioethics
- Frailty Triage: Is Rationing Intensive Medical Treatment on the Grounds of Frailty Ethical?
- Race Based Medicine, Colorblind Disease: How Racism in Medicine Harms Us All
- Ethical Analysis and Beyond! How Christian Anthropology and the Concept of Dignity Can Also Address Moral Distress in End-of-Life Care
- Vulnerable Life: Reflections on the Relationship Between Theological and Philosophical Ethics
- Public Reason as the Way for Dialogue
- A Data-Driven Argument in Bioethics: Why Theologically Grounded Concepts May Not Provide the Necessary Intellectual Resources to Discuss Inequality and Injustice in Healthcare Contexts
- “‘There’s No Harm in Talking’…True…But It Depends on How We Talk and What We Then Do”
- Correlating Bioethics and Theology
- Theorizing Religion in Its Meanings for Bioethics
- Harming Children to Benefit Others: A Reply
- A Pandemic Refocuses Bioethics on “The Big Questions”
- Purely Faith-Based vs. Rationally-Informed Theological Bioethics
- There’s No Harm in Talking: Re-Establishing the Relationship Between Theological and Secular Bioethics
- Pluralism in the Jewish Ethical Tradition
- Community, Complicity, and Critique: Christian Concepts in Secular Bioethics
- What’s Missing in Secular Bioethics? The False Dichotomy between “the Secular” and “the Theological”
- The Social Context of Religion in the Jurisdictions of Bioethics
- Methodological Clarity in Religious Perspectives of Bioethical Issues: Lessons from Islamic Studies
- Talking at Cross Purposes: Why We Shouldn’t Re-Establish the Relationship Between Theological and Secular Bioethics
- Talking Can Be Harmful Depending on What You Say
- A Framework to Evaluate Ethical Considerations with ML-HCA Applications—Valuable, Even Necessary, but Never Comprehensive
- Planning for the Known Unknown: Machine Learning for Human Healthcare Systems
- Accountability in the Machine Learning Pipeline: The Critical Role of Research Ethics Oversight
- Review of Robert Klitzman’s Designing Babies
- Response to Open Peer Commentary “Making It Count: Extracting Real World Data from Compassionate Use and Expanded Access Programs”
- Addressing the “Wicked” Problems in Machine Learning Applications – Time for Bioethical Agility
- It is Time for Bioethicists to Enter the Arena of Machine Learning Ethics
- Needs to Prepare for “Post-COVID-19 Syndrome”
- Identifying Ethical Considerations for Machine Learning Healthcare Applications
- An Evaluation of the Pipeline Framework for Ethical Considerations in Machine Learning Healthcare Applications: The Case of Prediction from Functional Neuroimaging Data
- Respect and Trustworthiness in the Patient-Provider-Machine Relationship: Applying a Relational Lens to Machine Learning Healthcare Applications
- AI Ethics Is Not a Panacea
- An Ethical Framework to Nowhere
- Where Bioethics Meets Machine Ethics
- Keeping the Patient at the Center of Machine Learning in Healthcare
- Embedded Ethics Could Help Implement the Pipeline Model Framework for Machine Learning Healthcare Applications
- Structural Disparities in Data Science: A Prolegomenon for the Future of Machine Learning
- Machine Learning in Healthcare: Exceptional Technologies Require Exceptional Ethics
- Machine Learning Healthcare Applications (ML-HCAs) Are No Stand-Alone Systems but Part of an Ecosystem – A Broader Ethical and Health Technology Assessment Approach is Needed
- What’s in the Box?: Uncertain Accountability of Machine Learning Applications in Healthcare
- Deepening the Normative Evaluation of Machine Learning Healthcare Application by Complementing Ethical Considerations with Regulatory Governance
- What Counts as “Clinical Data” in Machine Learning Healthcare Applications?
- The Fundamental Ethical Concern Is Lack of School Resources to Ensure Student Well-Being
- HIV Molecular Epidemiology: Tool of Oppression or Empowerment?
- Respecting Parental Permission and Maintaining Flexibility in Online Research Involving Adolescent Participants
- How Obvious is Obvious? The Role of Technology in Public Health
- Reassessing the Ethics of Molecular HIV Surveillance in the Era of Cluster Detection and Response: Toward HIV Data Justice
- Where Data Meets Action: Linking Health Surveillance with Community Partnership
- Duties When an Anonymous Student Health Survey Finds a Hot Spot of Suicidality
- Molecular HIV Surveillance and Public Health Ethics: Old Wine in New Bottles
- Big Data, Corporate Surveillance and Public Health
- Constrained Adolescent Autonomy for Healthcare Should Include Participation in Survey Research
- Adding a Voice to the Unique Ethical Considerations in Molecular HIV Surveillance
- A Therapeutic Conundrum: Should a Physician Serve Simultaneously as Caregiver and Researcher?
- Digital Negotiations: Navigating Parental Permission and Adolescent Assent for On-Line Survey Participation
- What is a Bioethics of the Oppressed in the Age of COVID-19?
- Inherent Conflict of Interest in Clinical Research: A Call for Effective Guidance
- Furthering Discussion of Ethical Implementation of HIV Cluster Detection and Response
- Ambulance Charters during the COVID-19 Pandemic and Equitable Access to Scarce Resources
- Not All Conflicts Are Bad: Why Some Conflicts of Interests Advance Patients’ Interests
- Advancing Data Justice in Public Health and Beyond
- Comments Confirm That Student Health Surveillance Needs Ethics Guidelines to Act on Risk-Cluster Findings
- Conflicts of Interest and Recommendations for Clinical Treatments That Benefit Researchers
- Click Here to Complete This Survey: Online Research, Adolescents, and Parental Consent
- We Are People, Not Clusters!
- Wise Use of Surveillance Data: Evolving HIV Policy and Emerging Considerations Regarding COVID-19
- From Subject to Fellow Researcher: Reconceptualising Research Relationships to Safeguard Potentially Vulnerable Survey Participants
- An Ethics for Public Health Surveillance
- Incidental Findings in Public Health Research: The Importance of Maintaining Trust
- Benefit of HIV Molecular Surveillance is Unclear, but Risks to Prevention Norms Are Clear
- Structural Deprioritization and Stigmatization of Mental Health Concerns in the Educational Setting
- Ethical Convergence and Ethical Possibilities: The Implications of New Materialism for Understanding the Molecular Turn in HIV, the Response to COVID-19, and the Future of Bioethics
- The Importance of Assessing Mental Health Issues and Preventing Suicidality in Studies on Healthy Participants
- Conceptualizing a Bioethics of the Oppressed: Oppression, Structure, and Inclusion
- Fourth Pillar or “Third Rail?:” Towards a Community-Centered Understanding of the Role of Molecular HIV Surveillance in Ending the HIV Epidemic in the United States
- Technology Changes the Ethical Stakes in HIV Surveillance and Prevention: Response to Open Peer Commentaries on “Reassessing the Ethics of Molecular HIV Surveillance in the Era of Cluster Detection and Response”
- Encouraging Vaccination Ethically: How Can Pox Parties for Grannies and Vaccine-Preventable Diseases Be Avoided?
- The Inherent Unfairness of COVID-19 Drug Access Pathways
- The Decision to Enroll in a Clinical Trial Should Be Unencumbered
- Guiding Difficult Decisions on Scarce Investigational Therapeutic Agents in the COVID-19 Pandemic
- The Limits of Individualism: Potential Societal Harms from the EAP for Convalescent Plasma
- Pox Parties for Grannies? Chickenpox, Exogenous Boosting, and Harmful Injustices
- Ethically Allocating COVID-19 Drugs Via Pre-approval Access and Emergency Use Authorization
- Physicians’ Ethical and Professional Obligations about Right-to-Try Amidst a Pandemic
- Adopting an Anti-Racist Model of COVID-19 Drug Allocation and Prioritization
- Unintended Effects, Iatrogenic Harms, and the Challenge of Population-Wide Vaccination Compliance
- Using Individuals as (Mere) Means in Management of Infectious Diseases without Vaccines. Should We Purposely Infect Young People with Coronavirus?
- Introducing Routine Varicella Vaccination? Not so Fast!
- How to Be Fair, and Power Research? Select Patients by Flipping a Coin
- The Strawman at the Pox Party
- Varicella Vaccination, Counting Harms and Benefits, and Obligations to Others
- Fairness and Protection for the Vulnerable: Lessons from Esketamine
- The Case for Methodological Pluralism in Medical Science
- Allocating Remdesivir Under Scarcity: Social Justice or More Systemic Racism
- Allocating Scarce Unproven Interventions during Public Health Emergencies: Insights from the WHO MEURI Framework
- Not Society’s Sacrificial Lambs: It is Wrong to Withhold Vaccination from Children to Benefit Others
- Vaccine-Associated Shingles: What Do We Owe Varicella Vaccine Recipients in Adulthood?
- Are Generational Welfare Trades Always Unjust?
- Aggregate Wellbeing as Foundation to Discourage Childhood Chickenpox Vaccination
- No Easy Answers in Allocating Unapproved COVID-19 Drugs Outside Clinical Trials
- Response to Open Peer Commentaries on “Solidarity and Community Engagement in Global Health Research”
- Enriching, Rather than Revising, the Conceptual Toolbox on Germline Interventions
- Revising, Correcting and Transferring Genes: Germline Editing Versus Natural Reproduction
- Beyond Precedent Autonomy and Current Preferences: A Narrative Perspective on Advance Directives in Dementia Care
- It Is Time to Consult the Children: A Mother Who Faced Mitochondrial Replacement and Her Son Consider the Limits of Genetic Modification
- Beyond Cognition: Psychological and Social Transformations in People Living with Dementia and Relevance for Decision-Making Capacity and Opportunity
- New Barriers on the Slippery Slope?
- The Moral Weight of Preferences: Death, Sex, and Dementia
- Revising, Correcting, and Transferring Genes
- The Nexus of Medical Professional Ethics and Business Ethics
- Advance Directives for Dementia Can Survive Altered Preferences
- Suicide Attempts and the Obligations of Medical Providers
- Personal Transformation and Advance Directives: An Experimental Bioethics Approach
- Comfort Care after Self-Immolation: Is the Physician Complicit?
- Why We Should Not Let the Cheerfully Demented Die
- Surprise Billing as a Source of Vulnerability—An Ethics Question Indeed
- Surprise Billing in the Emergency Department: What’s a Clinical Ethics Consultant to Do?
- Living Will Versus Will to Live? How to Navigate Through Complex Decisions for Persons With Dementia
- Surprise Billing in a Hospital Emergency Department – An Ethical, Contractual, and Legislative Conundrum
- Where Do You End, and I Begin? How Relationships Confound Advance Directives in the Care of Persons Living with Dementia
- Host as a Unique Ethical Dimension of Germline Interventions
- Response to Open Peer Commentaries on “Partnering with Patients to Bridge Gaps in Consent for Acute Care Research”
- Upstream Ethical Mapping of Germline Genome Editing
- Losing Rather than Choosing: A Defense of Advance Directives in the Context of Dementia
- Days of Future Past: Reply to Open Peer Commentaries on “Revising, Correcting, and Transferring Genes”
- Advanced Care Planning: Promoting Autonomy in Caring for People with Dementia
- Dementia, Cognitive Transformation, and Supported Decision Making
- A Critical Dialogue on the Transformational Nature of Dementia: Response to Open Peer Commentaries on “Cognitive Transformation, Dementia, and the Moral Weight of Advance Directives”
- Holding On: A Community Approach to Autonomy in Dementia
- Germline Gene Editing: Minding the Past and the Future
- Whose Preferences?
- Ethically Problematic Medical Device Representation
- Assessing the Ethical Distinctions Between Different Types of Prospective Human Germline Genetic Interventions
- Gremlins in the Germline
- Of the Rights and Best Interests of Future Generations
- Understanding Advance Directives as a Component of Advance Care Planning
- Ethical Framework for Next-Generation Genome and Epigenome Editing
- Advance Directives and Transformative Experience: Resilience in the Face of Change
- Technical Categories and Ethical Justifications: Why Cwik’s Approach is the Wrong Way Around for Categorizing Germ-Line Gene Editing
- Non-Human Germline Interventions
- Is It All About Revising, Correcting, and Transferring Genes?
- Cognitive Transformation, Dementia, and the Moral Weight of Advance Directives
- Treatment Refusal in the Setting of Self-Immolation
- The Irrelevance of Origins: Dementia, Advance Directives, and the Capacity for Preferences
- “Why Should Adamancy of an Uninformed View Give Moral Weight?”
- Response to Open Peer Commentaries on “How Payment for Research Participation Can Be Coercive”
- Honoring a Request for Comfort Measures Only After Self-Harm
- Germline Gene Editing for Sickle Cell Disease
- Defending the Inclusion of Categorical Exclusion Criteria in Crisis Standard of Care Frameworks
- Corona and Community: The Entrenchment of Structural Bias in Planning for Pandemic Preparedness
- Why Healthcare Workers Ought to Be Prioritized in ASMR During the SARS-CoV-2 Pandemic
- Why Healthcare Workers Should Not Be Prioritized in Ventilator Triage
- Ethical Triage Demands a Better Triage Survivability Score
- Ethical Considerations for “Reopening” Health Care Organizations Amid COVID-19
- Justice and Guidance for the COVID-19 Pandemic
- Rationing Crisis: Bogus Standards of Care Unmasked by Covid-19
- Making It Count: Extracting Real World Data from Compassionate Use and Expanded Access Programs
- Ventilator Allocation for Pediatrics during COVID-19 – How We Avoided Drawing Lots for Tots
- Ethical Challenges in Advance Care Planning During the COVID-19 Pandemic
- The Shield and Sword of Biosecurity: Balancing the Ethics of Public Safety and Global Preparedness
- To Procure or Not to Procure: Hospitals Face Significant Ethical Dilemmas Regarding Organ Donation During the COVID-19 Pandemic
- Implementing VA’s Authoritative Ethical Guidance in a Pandemic
- From Ventilators to Vaccines: Reframing the Ethics of Resource Allocation
- Allocating Ventilators During the COVID-19 Pandemic and Conscientious Objection
- Using a Public Health Ethics Framework to Unpick Discrimination in COVID-19 Responses
- Beyond Ventilators and Prematurity: Most Rationing Dilemmas Are Morally Fraught
- Compassionate Release as a “Right” in the Age of COVID-19
- Ethics as Usual? Unilateral Withdrawal of Treatment in a State of Exception
- When Exclusion Criteria Are Appropriate
- A Conceptual Framework for Clearer Ethical Discussions About COVID-19 Response
- More than Warm Fuzzy Feelings: The Imperative of Institutional Morale in Hospital Pandemic Responses
- Reopening Economies during the COIVD-19 Pandemic: Reasoning about Value Tradeoffs
- Rights Don’t Stand Alone: Responsibility for Rights in a Pandemic
- A Call for Dialysis-Specific Resource Allocation Guidelines During COVID-19
- Maryland’s Experience With the COVID-19 Surge: What Worked, What Didn’t, What Next?
- Flattening the Rationing Curve: The Need for Explicit Guidelines for Implicit Rationing during the COVID-19 Pandemic
- Are Immunity Licenses Just?
- COVID in NYC: What New York Did, and Should Have Done
- It’s Not Easy Bein’ Fair
- Using Functionality Rather than Elective Nature to Characterize Neurosurgeries During Pandemic Triage
- COVID-19, Pandemic Triage, and the Polymorphism of Justice
- Preserving the Reproductive Rights of Girls and Women in the Era of COVID-19: The Need for a Least Restrictive Solution
- Embedding the Problems Doesn’t Make Them Go Away
- Disability and Contingency Care
- Guiding Principles of Global Health Governance in Times of Pandemics: Solidarity, Subsidiarity, and Stewardship in COVID-19
- The Moral Status of Newborns: Before, during, and after the Pandemic
- Research Ethics during a Pandemic: A Call for Normative and Empirical Analysis
- Examining Public Trust in Categorical versus Comprehensive Triage Criteria
- Saving the Babies or the Elderly in a Time of Crisis?
- A Novel Approach Using Social Media to Solve Medical Ethical Dilemmas and Legal Risks in the Emergencies of COVID-19
- Ethical Dilemmas in Covid-19 Medical Care: Is a Problematic Triage Protocol Better or Worse than No Protocol at All?
- Ethical Allocation of Remdesivir
- Periviability in a Pandemic: Good Ethics Still Considered Essential
- The Regulation of COVID-19 “Challenge” Studies
- Resource Allocation in COVID-19 Research: Which Trials? Which Patients?
- Racial Disparities in Preemies and Pandemics
- Bioethics Emergencies Can Be Used to Perform a Real-World Test of Utilitarian Policies
- Reconceptualizing Triage to Incorporate Principles of Risk and Uncertainty: An Example from Deep Brain Stimulation Patients with Treatment-Resistant Disorders
- People With Disabilities in COVID-19: Fixing Our Priorities
- The Meaning of Care and Ethics to Mitigate the Harshness of Triage in Second-Wave Scenario Planning During the COVID-19 Pandemic
- Ethics Lessons From Seattle’s Early Experience With COVID-19
- Ethical Challenges Arising in the COVID-19 Pandemic: An Overview from the Association of Bioethics Program Directors (ABPD) Task Force
- Positive Public Health Ethics: Toward Flourishing and Resilient Communities and Individuals
- COVID in NYC: What We Could Do Better
- Myopia in Reportability of Ethical Concerns in Healthcare Ethics Consultation
- The Case Against Solicitation of Consent for Apnea Testing
- Engaging Patients and Families in the Ethics of Involuntary Psychiatric Care
- Death Determination and Clinicians’ Epistemic Authority
- Can’t Hit Pause? On the Constitutive Elements of Responsible Ventilator Management & the Apnea Test
- Gaps in Ethics Consultation Support for Patients and Families and Practical Guidance for Future Research or Quality Work Involving These Stakeholders
- Requiring Consent for Brain-Death Testing: A Perilous Proposal
- How to Support Patient and Family in Dealing with Ethical Issues? The Relevance of Moral Case Deliberation
- Informed Consent Should Not Be Required for Apnea Testing and Arguing It Should Misses the Point
- Schrödinger’s Cat and the Ethically Untenable Act of Not Looking
- Broadening the Scope of Health Care Ethics Consultation: A Response to Open Peer Commentaries on Patient and Family Description of Ethical Concerns
- Taking Family-Centered Care Seriously
- Informed Consent for Apnea Testing: Meeting the Standard of Care
- Beyond the Apnea Test: An Argument to Broaden the Requirement for Consent to the Entire Brain Death Evaluation
- Legal and Ethical Considerations for Requiring Consent for Apnea Testing in Brain Death Determination
- The Moral Distress of Patients and Families
- Patient and Family Descriptions of Ethical Concerns
- Accommodating Apnea Testing Not Death Determination Refusal
- Determining Death and the Scope of Medical Obligations
- The Genetic Family as Patient?
- The Apnea Test: Requiring Consent for a Test That is a Self-Fulfilling Prophecy, Not Fit for Purpose, and Always Confounded?
- Shared Decision-Making in the Determination of Death by Neurologic Criteria
- Who Cares About Care? Family Members as Moral Actors in Treatment Decision Making
- Apnea Testing is Medical Treatment Requiring Informed Consent
- Restoring Trust and Requiring Consent in Death by Neurological Criteria
- Response to Open Peer Commentaries “Rethinking the Ethical, Legal, and Clinical Foundations of Informed Consent and Shared Decision-Making for Brain Death Determination”
- Brain Death Testing: Time for National Uniformity
- COVID-19 and Financial Vulnerability: What Health Care Organizations and Society Owe Each Other
- Vexing, Veiled, and Inequitable: Social Distancing and the “Rights” Divide in the Age of COVID-19
- The Value and Ethics of Using Technology to Contain the COVID-19 Epidemic
- Eliminating Categorical Exclusion Criteria in Crisis Standards of Care Frameworks
- Ethical and Sensible Dissemination of Information During the COVID-19 Pandemic
- Rural and Remote Communities: Unique Ethical Issues in the COVID-19 Pandemic
- Potential Implications of Testing an Experimental mRNA-Based Vaccine During an Emerging Infectious Disease Pandemic
- Prioritizing Frontline Workers during the COVID-19 Pandemic
- Should Extremely Premature Babies Get Ventilators During the COVID-19 Crisis?
- COVID-19: Act First, Think Later
- Medically Vulnerable Clinicians and Unnecessary Risk During the COVID-19 Pandemic
- A Model to Be Emulated
- Enlisting the Experts: Experienced Research Participants in Study Planning
- The Two Components of Beneficence and Wellbeing in Medicine: A Restatement and Defense of the Argument
- Guiding Principles of Community Engagement and Global Health Research: Solidarity and Subsidiarity
- Solidarity in Global Health Research—Are the Stakes Equal?
- From Knowing to Understanding: Revisiting Consent
- Is Solidarity Possible in Global Health Policy and Systems Research?
- Peers, Near-Peers, and Outreach Staff to Build Solidarity in Global HIV Research With Adolescents
- Community Empowerment Through Education: The Inherent Foundation of Promoting Solidarity in Global Health Research
- Consent Related Challenges for Neonatal Clinical Trials
- Better Consent—and Not Just for When Time Is Short
- “Living Robots”: Ethical Questions About Xenobots
- The Role of Solidarity in Research in Global Health Emergencies
- Rules of the Road for Patient-Driven Consent Processes
- Empowering Marginalized Communities
- Bridging the Researcher-Participant Gap: A Research Agenda to Build Effective Research Relationships
- Solidarity, Social Risk, and Community Engagement
- Partnering With Research Staff Members to Bridge Gaps in Consent
- ‘Who is (Really) the Focus of Engagement?’ – Evidence From Engagement Research
- Consent in the Acute Setting: A Necessary Evolution
- Sense and Sensibility
- Partnering With Patients to Bridge Gaps in Consent for Acute Care Research
- Solidarity and Community Engagement in Global Health Research
- Reimagining the Goal of Informed Consent to Help Patients Make Decisions About Research
- Ends and Means of Solidarity
- Intersectionality and Community Engagement: Can Solidarity Alone Solve Power Differences in Global Health Research?
- Consent for Acute Care Research and the Regulatory “Gray Zone”
- The COVID-19 Pandemic: Critical Care Allocated in Extremis
- In Response to COVID-19 Pandemic Physicians Already Know What to Do
- Ethical Advocacy Across the Autism Spectrum: Beyond Partial Representation
- Like Autism, Representation Falls on a Spectrum
- Patient Representation: Mind the Gap Between Individual and Collective Claims
- Implementation Science and Bioethics: Lessons From European Empirical Bioethics Research?
- Ethical Training Can Turn an “Ought” to a “Can”
- Beyond Translating Ethical Norms Into Practice: Integrating Implementation and Assessment Mindsets
- Parents of Autistic Children Are Deserving of Support
- Additional Challenges to Fair Representation in Autistic Advocacy
- Implementation Science Can Do Even More for Translational Ethics
- Bioethical Ideals, Actual Practice, and the Double Life of Norms
- Making Ethics Happen: Addressing Injustice in Health Inequalities
- Clearing Muddy Waters: The Need to Reconceptualize Minor Increase over Minimal Risk in Pediatric Rare Disease Research
- An “Implementation Mindset” in Normative Bioethics Will Have Unintended Consequences
- Responsible Innovation For and From Ethical Integration
- Patenting Foundational Technologies: Recent Developments in the CRISPR Patent Struggle
- Representing the Autism Spectrum
- Flexibility Required: Balancing the Interests of Children and Risk in Drug Development for Rare Pediatric Conditions
- Neurodiversity and Autism Advocacy: Who Fits Under the Autism Tent?
- The Feasibility of Implementing Normative Claims That Are Especially Strong and Important
- Ethical Drug Development for Rare Childhood Diseases: When There Are Limited But Promising Data in Adults, How to Choose Between Safety or Efficacy Studies?
- When Higher Risk Does Not Equal Greater Harm: Doing the Most Good in a Limited Pediatric Study Population
- Implementation in Bioethics: A Plea for a Participatory and Dialogical Approach
- Ethical Representation by Patient Advocacy Organizations Also Requires Responsible Management of Potential Financial Conflicts of Interest
- Autistic Self Advocacy in the Developmental Disability Movement
- Autism Advocacy Before and After DSM-5
- Representation Is Never Perfect, But Are Parents Even Representatives?
- Non-Electoral Representation and Promoting Welfare—Beyond Descriptive Representation
- Hope Springs Eternal: Pitfalls of Partial Representation by Advocates Who Only Want the Best
- Beyond Autism: Advocacy for Neurodevelopmental Differences
- A Care Ethics Approach to Ethical Advocacy for Community Conditions
- The Use of Pediatric Extrapolation to Avoid Unnecessary Pediatric Clinical Trials
- Mind the Gap: How Should We Translate Specific Ethical Norms Into Interventions?
- Greater Than Minimal Risk, No Direct Benefit – Bridging Drug Trials and Novel Therapy in Pediatric Populations
- Civic Engagement, Autism and Deliberative Democracy: Prioritizing the Inclusion of Marginalized Perspectives
- Translational Ethics and Challenges Involved in Putting Norms Into Practice
- Using Implementation Science to Enact Specific Ethical Norms: The Case of Code Status Policy
- Balancing Scientific Progress With Pediatric Protections: No Direct Benefit Now, But Potential Novel Therapy in the Future
- Meaningful Fissures: The Value of Divergent Agendas in Patient Advocacy
- Bringing Known Drugs to Pediatric Research: Safety, Efficacy, and the Ambiguous Minor Increase in Minimal Risk
- Balancing Risk and Reward: Greater Research Oversight Is Appropriate for Novel Therapies for Children With Life-Limiting Illness
- The “Ought-Is” Problem: An Implementation Science Framework for Translating Ethical Norms Into Practice
- Reconciling the HEC-C and Clinical Ethics Fellowship Training Programs: Implications of the Baylor Experience
- What the HEC-C? An Analysis of the Healthcare Ethics Consultant-Certified Program: One Year in
- Beneficence, Interests, and Wellbeing in Medicine: What It Means to Provide Benefit to Patients
- To Be Coherently Beneficient, Be Communitarian
- Credentialing Ethics Expertise
- Value Theory, Beneficence, and Medical Decision-Making
- Examining the Doing of Ethics Support Staff. A Dialogical Approach Toward Assessing the Quality of Facilitators of Moral Case Deliberation
- Revisiting Beneficence: What Is a ‘Benefit’, and by What Criteria?
- Worth Our Salt: Reflections of an Early Career Clinical Ethicist
- A Nudge Without a Wink!
- You Kids Get off My Ethics Lawn!: An Admitted Curmudgeonly Critique of Credentialing Individual Clinical Ethics Consultants
- Beneficence in Maternity Care: Objective Aspects of Subjective Goals
- Cost Considerations Within a Duty of Beneficence
- When “Objectivity” in Clinical Benefit is Seen Through Different Lenses
- Virtues and Phronesis: Making Decisions in the Clinical Context
- The Healthcare Ethics Consultant-Certified Program: Fair, Feasible, and Defensible, But Neither Definitive Nor Finished
- First Steps: Inclusive or Exclusive?
- Beneficence and Wellbeing: A Critical Appraisal
- Looking to Other Professions to Advance the Health Care Ethics Consultant Certification Program
- Ensuring Certified Healthcare Ethics Consultants Are Competent to Practice
- Have the Cobbler’s Children Come Home to Roost?
- HEC-C: From Halsted’s Perspective
- A Call for Diversity and Inclusivity in the HEC-C Program
- A Capabilities-Based Account of Wellbeing
- By Various Ways We Arrive at the Same End
- Certification Assesses Minimal Competency for Healthcare Ethics Consultants, But What About Assessing Interpersonal Skills?
- A Profession Without Expertise? Professionalization in Reverse
- Goal-Concordant Care Within the Range of the Possible
- Healthcare Ethics Consultant Certification: The Big Picture
- Decisional Humility and the Marginally Represented Patient
- Upstream Influences and Fair Subject Selection
- Moral Intimacy, Authority, and Discretion
- The Fifth Face of Fair Subject Selection: Population Grouping
- Bolstering Surrogate Decision Making for Marginally Represented and Unrepresented Patients: One System’s Approach and Experience
- Clinical Research Subject Selection during Public Health Disasters: Reconceptualizing Fairness in a Global Ethical Context
- Marginally Represented Patients, Best Interests, and Ends-in-Themselves
- The Challenge of Selecting Participants Fairly in High-Demand Clinical Trials
- Compassionate Care for the Unconscious and Incapacitated
- Context is Needed When Assessing Fair Subject Selection
- Redistributing Fair Subject Selection
- From Solo Decision Maker to Multi-Stakeholder Process: A Defense and Recommendations
- Risk Limits in Fair Subject Selection
- Fair Inclusion and the Pursuit of Robustly Generalizable Clinically Relevant Knowledge
- Epistemic Burdens, Moral Intimacy, and Surrogate Decision Making
- Fair Subject Selection Procedures Must Consider Scientific Uncertainty and Variability in Risk and Benefit Perception
- Four Faces of Fair Subject Selection
- On Surrogates’ Moral Authority: A Reply to Berger
- Addressing the Perceived Duality of Represented and Unrepresented Patients: Legal Findings in a Moral Context
- Marginally Represented Patients and the Moral Authority of Surrogates
- Can the Principles of Research Ethics Help Us Distribute Clinical Resources More Fairly?