- Prenatal Testing for Non-Medical Traits
- Bioethicists Are Not so Divided on Reproductive Testing for Non-Medical Traits: Emerging Perspectives on Polygenic Scores
- Including Non-Medical Traits in the NIPT: What Can We Learn from an Ethics of Care Approach?
- Role of Vulnerability and Control in Prenatal Testing Ethical Decision-Making
- Genomic Uncertainty as a Burden for Reproductive Choice? The Problem of Probabilistic Causation in Non-Invasive Prenatal Testing
- Security and Sharing of NIPT Data Are the Basis of Ethical Decision-Making Related to Non-Medical Traits
- Nurtured Genetics: Prenatal Testing and the Anchoring of Genetic Expectancies
- Anticipatory Governance of Noninvasive Prenatal Testing for “Non-Medical” Traits: Lessons from Regulation of Medically Assisted Reproduction
- The Slippery Slope of Prenatal Testing for Social Traits
- The Need for Diverse Empirical Data to Inform the Use of Polygenic Risk Scores in Prenatal Screening
- Expanding Our Thoughts about Autonomy in Relation to Whether We Should Offer Genetic Testing for Nonmedical Traits
- Considering the Collective in Ethical Decision-Making Concerning Non-Medical Uses of Noninvasive Prenatal Testing
- Terminology and Consistency
- Consistency of What? Appropriately Contextualizing Ethical Analysis of Non-Invasive Prenatal Testing
- Going Back to Basics: What is the Target of Prenatal Screening?
- Noninvasive Testing for “Non-Medical” Traits: A Misplaced Expressive Concern, Tough Policy Choices
- The Potential Role of Nudging in Expanded Noninvasive Prenatal Testing
- Precision Medicine for Whom? Public Health Outputs from “Genomics England” and “All of Us” to Make Up for Upstream and Downstream Exclusion
- ChatGPT: Temptations of Progress
- Response to Open Peer Commentaries on “Ethical Issues in Using Behavior Contracts to Manage the ‘Difficult’ Patient Family”
- Clarifying the DDR and DCD
- DCD Donors Are Dying, but Not Dead
- Never Let Me Go: “Almost Dead” Isn’t Good Enough
- The Dead Donor Rule, Reversibility and Donor Wishes
- Is Transparency about the Line between Life and Death Good for Organ Donation?
- Why We Still Need a Substantive Determination of Death
- The Needs to Focus on Process and Precise Language in Ethical Determination of cDCD
- Not Dead, but Close Enough? You Cannot Have Your Cake and Eat It Too in Satisfying the DDR in cDCD
- Some Problems with the ‘It Has Been Decided That You Will Die and Are No Longer in Need of Your Organs Donor Rule’
- Changing the Focus in the Donation After Circulatory Death Debates
- Dead Enough? NRP-cDCD and Remaining Questions for the Ethics of DCD Protocols
- Donor Rules—Dead and Living
- Donors and Organs at the Borders of Vitality and Public Trust: Why DCD Donors Must Be Dead and Not Dying
- The Dead Donor Rule Is Not Morally Sufficient
- Don’t Leave the Heart Behind
- Almagest Again? An Epistemological Critique of Nielsen Busch and Mjaaland
- Defining the Cause of Death and Vitality of Organs in the Ethical Analysis of Controlled Donation after Circulatory Death Procedures
- Pragmatic Aspects of Controlled Donation after Circulatory Death and Ethical Considerations for Alternative Approaches
- Protecting Life and Ensuring Death—Confounding the Dead Donor Rule
- The Dead Donor Rule Does Require that the Donor is Dead
- Cerebral Circulatory Arrest and the Dead Donor Rule
- Death Lost in Translation
- Normothermic Regional Perfusion, Causes, and the Dead Donor Rule
- The End of Personhood
- An Overview of Ethical Issues Raised by Medicolegal Challenges to Death by Neurologic Criteria in the United Kingdom and a Comparison to Management of These Challenges in the USA
- Spheres of Morality: The Ethical Codes of the Medical Profession
- Beyond Mediation: A Toolkit Approach to Preventing and Managing Conflict with Patients and Families in Difficulty
- The Fallibility of Personal Experience
- Assisted Dying: More Attention Should Be Paid to the Epistemic Asset of Personal Experience
- The Problem of “Relevant Experience”
- The Patient as Responsible Agent: Ethical Constructs Important to considering Behavioral Contracts for “Difficult” Patients and Families
- Potential Legal Problems Embedded in Behavior Contracts
- Unique Ethical and Practical Considerations in the Use of Behavior Contracts for Families of Minors and Minoritized Populations in Pediatric Settings
- Behavior Contracts and Lessons from Parenting “Rotten” Kids
- The Benefits of Experience Greatly Exceed the Liabilities
- Responding to Parental Objections Over Testing for Death by Neurologic Criteria
- Pediatric Brain Death Testing Over Parental Objections: Not an Ethically Preferable Option
- Behavior Contracts Are Not Psychologically Naïve
- What is “Personal” About Personal Experience? A Call to Reflexivity for All
- “What Does a Life Worth Living Mean to You?” Narrative Approaches to Ethics Consultation in the Context of Trauma, Treatment Refractory Depression, and Life-Sustaining Care Refusals
- Rethinking the Moral Authority of Experience: Critical Insights and Reflections from Black Women Scholars
- Ethics, Engagement, and Escalating Interventions
- Disputes over Diagnosing Death: Is It Ethical to Test for Death by Neurologic Criteria over Parental Objection?
- Trauma-Informed Ethics Consultation in the ICU: Exploring Best Practices in a Case Involving a Self-Inflicted Gunshot Wound
- The Right Tool for the Job: A Taxonomy for Stakeholder Engagement
- Who’s Experience, Which Liability?
- Disability Bioethics and the “Liabilities” of Personal Experience
- Paperwork: Put Behavior Contracts at the Bottom of the Pile
- Bioethics and the Power Asymmetry Contextualizing Experience
- Conflict Over Death by Neurologic Criteria: Caution, Consent, and Nursing Considerations
- Trusting the Ethics Consultant: Adopting a Trauma-Informed Approach to Ethics Consultation
- Transforming Behavior Contracts Into Collaborative Commitments With Families
- Whose Trauma? Who’s Trauma Informed?
- Epistemic Rights and Responsibilities of Digital Simulacra for Biomedicine
- Public Engagement through Inclusive Deliberation: The Human Genome International Commission and Citizens’ Juries
- Do Clinicians Have a Duty to Participate in Pragmatic Clinical Trials?
- Philosophizing Still: A Brief Reintroduction to Clinical Philosophy
- Paired Publication: A Way to Lower One Barrier between Philosophical Insight and Bioethics
- The Mutual Benefit of the Integration of Philosophy and Bioethics – Our Experience from an Interdisciplinary Research Project on (Epi-)Genome Editing
- Bioethics Consultation and First-Order Moral Reasoning: Leaving Philosophy at the Hospital Doors
- A Future for Bioethics?
- Ethics Consultation—A Blind Spot of Philosophy in Bioethics?
- The Place of Philosophy in Bioethics Today? Ancestry Counts
- A Rejection of “Applied Ethics”: Philosophy’s Real Contributions to Bioethics Found Elsewhere
- The Role of Philosophers in Bioethics
- Bioethicist Position Available: Philosophers Need Not Apply
- Bioethics is Philosophy
- Some Reflections on the Importance of Philosophy to Bioethics
- How Philosophy of Science Can Unlock New Methods in Bioethics
- The Place of Bioethics in Philosophy: Toward a Mutually Constructive Integration
- The Disconnection That Wasn’t: Philosophy in Modern Bioethics from a Quantitative Perspective
- Bioethics, Philosophy, and Philosophy of Disability
- Exploring the “Other” Role of Philosophy in Bioethics: The Case of Addressing Moral Distress and Rediscovering Meaning and Purpose
- Rethinking the Role of Experimental Philosophy in Bioethics
- The Role of Philosophy After the Empirical Turn in Bioethics
- Postponed Withholding: Harmful for the Infant and Increasing the Complexity of Decision-Making
- Use Certified Patient Decision Aids to Facilitate Shared Decision Making at the Margins of Viability
- Against Multiplying Clinical Ethics Standards without Necessity: The Case for Parsimony in Evaluating Decision-making Capacity
- Reformulating Decision-making Capacity
- Respecting Patients’ Authority to Make Healthcare Decisions
- OrganEx: What Will It Mean?
- Sharing Decisions When Withdrawing a Technology Is Not the Same as Withholding It
- Postponed Withholding: The Wrong Nudge
- Informed Nondissent at the Limits of Viability
- Deferring Decision-making in the Face of Uncertainty
- Postponed Withholding Does Not Postpone Attachment
- What Is the Ethical Goal of Empowering Parents in Emergent Decision-making about Their Premature Newborn?
- Supported Decision Making, Treatment Refusal, and Decisional Capacity
- The Postponed Withholding Model: An Autoethnographic Analysis
- Should We Aspire to Be Rational About Letting Babies Die?
- The Birth of Tragedy? Extremely Premature Births and Shared Decision-Making
- Embrace the Gray: How Tackling the Clinical Complexities of the Gray Zone Will Improve Decision-making
- Goals- and Burdens-based DMC as Expressions of Value Rather than Manifestations of DMC
- Authority, Autonomy, and Capacity
- Why Not Jump out of Decision-Making Capacity?
- The Path More Easily Reversed: Postponed Withholding at Borderline Viability
- Delayed Withholding: Disguising Withdrawal of Life Sustaining Interventions in Extremely Preterm Infants
- Postponed Withholding: An Ethical Tool for Health Care Personnel to Empower Parents
- Optimizing Decision-Making in the Gray Zone at Birth
- Default Withdrawal: Exacerbating Mistrust for Our Most Vulnerable Families
- E-Cigarettes, the FDA, Public Health, and Harm Reduction: A Response to the Open Peer Commentaries
- An AI Bill of Rights: Implications for Health Care AI and Machine Learning—A Bioethics Lens
- Report Card Time: How Has the Biden Administration Addressed the U.S. Hispanic Community’s Social Determinants of Health?
- Bioethics and the Moral Authority of Experience
- Clinical Ethics – To Compute, or Not to Compute?
- Response to Open Peer Commentaries on “Privacy and Health Practices in the Digital Age”
- Against Over-Protectionism: Riskier Decisions Require Clearer Evidence of Capacity But Don’t Call for Stricter Criteria
- E-Cigarette Use and Regulation: A Comparative Analysis between the United States, the UK, and China
- Conceptual Compatibility and Transparency in Capacity Assessments
- Stepping Up or Stepping Back: FDA Roles in Producing and Shaping Knowledge of Pediatric Covid-19 Vaccines
- When Limiting Liberty, Tread Carefully: Autonomous Free Choices Should Not Be Overruled Because of the Beliefs and Values of the Decider
- Advice on Vaping in the Face of Empirical and Ethical Uncertainty
- When to Disclose a Borderline Incidental Finding
- Against Whitecoat Washing: The Need for Formal Human Rights Assessment in International Collaborations
- Respecting Autonomy and Balancing Benefits by Disclosing the Secondary Finding of Klinefelter’s
- Clarifying the Blurry Boundaries between Research and Clinical Care
- The Importance of Defining Actionability as Related to Disclosure of Secondary Findings Identified in Research
- An Externalist, Process-Based Approach to Supported Decision-Making
- Limitations on the Capability of the FDA to Advise
- We Don’t Offer What Can’t Be Chosen: Why Harmful Consequences Should Not Be “Decisive” in Assessing Decision-Making
- To Disclose or Not to Disclose: Secondary Findings of XXY Chromosomes
- The Nature of Harm: A Wine-Dark Sea
- The Value of Value in Decision-Making Competence Assessments
- Determinations of Competence Ought Not to Be Primarily Grounded in Paternalistic Justifications regarding Welfare
- “Harmful” Choices and Subjectivity: Against an Externalist Approach to Capacity Assessments
- Against Externalism: Maintaining Patient Autonomy and the Right to Refuse Medical Treatment
- Against Externalism in Capacity Assessment—Why Apparently Harmful Treatment Refusals Should Not Be Decisive for Finding Patients Incompetent
- Preserve Patient Autonomy; Resist Expanding the Harm Principle to Override Decisions by Competent Patients
- On the Relationship between Competence and Welfare
- E-Cigarettes, the FDA’s Strategic Orientation, and Lessons from the Opioid Crisis
- Moral Wrongs, Epistemic Wrongs, and the FDA
- Harm Reduction Ethics, Public Health, and the Manufacture of Doubt
- External Dynamics Contextualizing the FDA’s Role in E-Cigarette Regulation
- The Person-Affecting/Identity-Affecting Distinction between Forms of Human Germline Genome Editing Is Useless in Practical Ethics
- Reconceptualizing Identity and Ethics in the Context of Conception
- Personhood, Welfare, and Enhancement
- Evaluating the Lives of Others
- The Enduring Allure of Person-Affecting Arguments for Reproductive Technologies
- Epigenetics, Harm, and Identity
- “Involuntary (Moral) Bioenhancement” Can Add Value to the Debate on Human Germline Genome Editing
- Modality and Counterfactuals: Understanding the Role and Context of Metaphysical Underpinnings for Harm, Benefit and Identity Claims Arising from Genome Editing and Genetic Modification
- Is Gene Editing Harmless? Two Arguments for Gene Editing
- Theoretical vs Practical Reasons: Derek Parfit and Bioethics
- Reasons to Genome Edit and Metaphysical Essentialism about Human Identity
- Trojan Horses, Clinical Utility, and Parfitian Puzzles
- What Are the Wider Implications of Sparrow’s Benefit Argument?
- Dynamic Aspects of Human Genetics: Is the Human Germline the Bioethical Key to Human Genetic Engineering?
- Procreative Beneficence and Genome Editing
- Human Genome Editing and Identity: The Precariousness of Existence and the Abundance of Argumentative Options
- Enriching the Theory and Practice of Trauma Informed Ethics Consultation
- Neurologic Diseases and Medical Aid in Dying: Aid-in-Dying Laws Create an Underclass of Patients Based on Disability
- Response to Open Peer Commentaries on Toward a Framework for Assessing Privacy Risks in Multi-Omic Research and Databases
- Executive, Legislative, Judiciary, & Clinic: How the Fall of Roe Will Entrench Clinicians as Agents of the State and Create Ethical Conflicts throughout Medical Practice
- Yes, All Bioethicists Should Engage Abortion Ethics, but Who Would Be Interested in What They Have to Say?
- Dignitary Harms and Abortion Law
- Have Clinical Ethicists Been Complicit With the Marginalization of Abortion and What Can We Do to Improve Patient’s Rights?
- Theorizing the Meaning of Health in Abortion Law
- Roe v. Wade Was a Profound Disservice to the Country
- News Coverage of Abortion in Relation to Race and Class in the United States in 2021
- Beyond Abortion Clinics: How Overturning Roe Will Obstruct Life-Saving Research and Fetal Therapy
- The Invisible Prenatal Human Being
- Abortion and the Intersection of Ethics, Activism, and Politics
- Private Conversations, Public Debate
- More than Semantics: Abortion Access and Equity
- Another Consequence of Overturning Roe: Imperiling Progress on Clinical Research in Pregnancy
- Beware the Jackalopes
- See None, Do None, Teach None: How Dismantling Roe Impacts Medical Education and Physician Training
- A Health Disparity Framework for Abortion Eliminates Critical Discourse and Debate
- The Fallacy of Relevance and Moral Risks
- Why I’m Not Backing down from Fighting for Our Right to Abortion
- De-Medicalizing Abortion
- Ending the Debate Whether State-Mandated Pregnancies are Matters of Bioethics Concern
- The Role of Epistemic Injustice in Abortion Access Disparities
- Travel to Other States for Abortion after Dobbs
- Trauma Upon Trauma
- Rethinking Fetal Personhood in Conceptualizing Roe
- History of Racism in Healthcare: From Medical Mistrust to Black African-American Dentists as Moral Exemplar and Organizational Ethics—a Bioethical Synergy Awaits
- A Case of Patient Abandonment, or an Abandonment of Patients?
- Ethical Restraint Use With Incapable Absconding Patients: Goals, Proportionality, and Surrogates
- Regulatory Angels and Technology Demons? Making Sense of Evolving Realities in Health Data Privacy for the Digital Age
- Protecting Health Privacy through Reasonable Inferences
- An All-Too-Human Enterprise
- How to Use AI Ethically for Ethical Decision-Making
- Using Algorithms to Make Ethical Judgements: METHAD vs. the ADC Model
- Alzheimer’s Disease and the Invisible Person: The Missing Patient Voice
- Health Privacy, Racialization, and the Causal Potential of Legal Regulations
- Patient Abandonment in the Emergency Department?
- The AI Needed for Ethical Decision Making Does Not Exist
- Automating Justice: An Ethical Responsibility of Computational Bioethics
- AIgorithmic Ethics: A Technically Sweet Solution to a Non-Problem
- Protecting Privacy While Optimizing the Use of (Health)Data: The Importance of Measures and Safeguards
- Disproof of Concept: Resolving Ethical Dilemmas Using Algorithms
- Privacy and the Genetic Community
- Wrongful Birth: AI-Tools for Moral Decisions in Clinical Care in the Absence of Disability Ethics
- Implicit Fuzzy Specifications, Inferior to Explicit Balancing
- Rise of the Bioethics AI: Curse or Blessing?
- In Search of a Mission: Artificial Intelligence in Clinical Ethics
- Important Design Questions for Algorithmic Ethics Consultation
- Ethical Algorithmic Advice: Some Reasons to Pause and Think Twice
- “For Your Own Good”? Is It Ethical to Use Chemical Restraints on Patients Who Lack Capacity but Wish to Leave the Hospital against Medical Advice?
- The Medical Incapacity Hold—the Most Appropriate Solution to a Complex Clinical Problem
- When Protection From Risk-to-Self Causes Harm: A Brief Analysis of Restraint Use to Prevent Elopement
- Privacy, Health, and Race Equity in the Digital Age
- Who’s Abandoning Whom? The Role of Ethics Consultation for Unaccompanied Emergency Department Patients with Dementia
- Data, Privacy, and Agency: Beyond Transparency to Empowerment
- Healthcare Organizations Should Be Accountable Stewards of Patient Data
- The Principle of Autonomy in Biomedical- and Neuroethics
- On Certification’s Real Role
- Is It Ethical to Mandate Vaccination among Incarcerated Persons? Consider Enforcement and Ask People Living in Prisons and Jails
- Beyond Abortion: The Consequences of Overturning Roe
- The Ethics of Access: Reframing the Need for Abortion Care as a Health Disparity
- From Bridge to Destination? Ethical Considerations Related to Withdrawal of ECMO Support over the Objections of Capacitated Patients
- When Parents Prefer to Defer: Is ‘Deferral’ Always Problematic in Pediatric Decision-Making?
- When Clinicians Marginalize Decision-Makers
- Voice, Vulnerability and Dependency of the Child: Guiding Concepts for Shared-Decision Making
- Culturally Aware Communication Promotes Ethically Sensitive Care
- Respect for Readiness
- One Goal, Two Roles: Clinicians and Clinical Ethicists Should Approach Patients’ Ambivalence Differently
- Examining Interpersonal Factors in Patient Ambivalence
- Blood is Thicker than Water, or is It? The Possible Role of Stepparents in Pediatric Decision Making
- Supporting Marginalized Decision-Maker’s Autonomy(ies)
- One Patient, No Good Options: The Real Roots of Ambivalence in Medical Decision Making
- Exposing the Technological Roots of Ambivalence
- Appreciating the Role of the Unconscious in Situations of Patient Ambivalence
- The Role of Self-Illness Ambiguity and Self-Medication Ambiguity in Clinical Decision-Making
- Time Is Short, Social Relations Are Complex: Bioethics as Typology Industry
- Nudging, the Nocebo Effect, and Ambivalence
- Emotion as a Signpost in Complicated Pediatric Decision-Making
- Ambivalence: The Patient’s Perspective Counts
- From “How” to “Why”: Reasons for Magnifying and Marginalizing Voices in Pediatric Decision-Making
- Response to Open Peer Commentaries: On Social Harms, Big Tech, and Institutional Accountability
- The End of Roe v. Wade
- IRBs and the Protection-Inclusion Dilemma: Finding a Balance
- Research on the Clinical Translation of Health Care Machine Learning: Ethicists Experiences on Lessons Learned
- Bridging the AI Chasm: Can EBM Address Representation and Fairness in Clinical Machine Learning?
- Trauma and Community: Trauma-Informed Ethics Consultation Grounded in Community-Engaged Principles
- Extending Trauma-Informed Principles to Hospital System Policy Development
- A Systemic Approach to the Oversight of Machine Learning Clinical Translation
- My Story is Traumatic, You Probably Would Not Understand
- Challenges of Local Ethics Review in a Global Healthcare AI Market
- What Happened to Dad? The Complexity of Paternal Trauma and Ethical Care
- Broadening the Ethical Scope
- Rethinking the AI Chasm
- Trauma-Informed Ethics and Relational Health
- When Obligations Conflict: Necessary Violations of Trauma Informed Care in Ethics Consultation?
- Promoting Ethical Deployment of Artificial Intelligence and Machine Learning in Healthcare
- Scaling up the Research Ethics Framework for Healthcare Machine Learning as Global Health Ethics and Governance
- Trauma-Informed Approaches in Healthcare Ethics Consultation: A Missing Element in Healthcare for People Who Use Drugs during the Overdose Crisis?
- The Need for a Global Approach to the Ethical Evaluation of Healthcare Machine Learning
- Emerging Paradigms for Ethical Review of Research Using Artificial Intelligence
- Think Pragmatically: Investigators’ Obligations to Patient-Subjects When Research is Embedded in Care
- Review of Jennifer S. Blumenthal-Barby, Good Ethics and Bad Choices: The Relevance of Behavioral Economics for Medical Ethics
- Incorporating Ethics Consultations into Public Health Practice
- No Justification to Exclude State Ward from Pediatric Transplant Research
- Life-Saving Experimental Treatment for a Teenage Ward of the State
- Ethics Consultations in a Fetal Health Center
- The Existential Crisis of Clinical Ethics Consultants
- All Healthcare Ethics Consultation Services Should Meet Shared Quality Standards
- View Across the Pond: Insights from a National Survey on Clinical Ethics Services in Switzerland
- Ethics Consultant Training Standards: Don’t Lower the Bar Without Benefit
- The ASBH’s Obligation to Create Cost-Free Basic HEC Training
- Fuzzy Logic: How the Practicalities of State Involvement Shape the Most Ethically Supportable Way Forward
- Enrolling Foster Youth in Clinical Trials: Avoiding the Harm of Exclusion
- Improving Ethics Support: Seeing and Organizing Ethics Support Differently
- A Call for Evidence-Based Clinical Ethics Consultation
- Assistant Coach, Advice Columnist, or Seasoned Diplomat: Distinguishing Between Formal, Informal, and “FYI” Ethics Consultations
- Ethics Consultation: Data and the Path to Professionalization
- Enrolling Adolescents with Rare Disease for Early Phase Clinical Trials While Under the Care of Child Protection Services: Balancing Protection and Access
- Ethics Consultation Services as a Resource and its Implications for Evaluation Activities
- Quality Healthcare Ethics Consultation: How Do We Get It and How Do We Measure It
- A Hub and Spoke Model for Improving Access and Standardizing Ethics Consultations Across a Large Healthcare System
- It’s About Heterogeneity! Strategies to Advance the Evaluation of Ethics Consultation
- Measuring Value with Volume
- The Good, the Bad, and the Inconvenient
- Mitigating Moral Distress through Ethics Consultation
- Ethics Considerations Regarding Artificial Womb Technology for the Fetonate
- Conversational Artificial Intelligence in Psychotherapy: A New Therapeutic Tool or Agent?